What to do now?

[rayhanalopa]

I have suffered three early miscarriages in a row. I'm hypo and autoimmune positive. Searching in Internet, I came to know that APS can be reason for that. My physician has not suggested me any diagnosis. As I'm from an underdeveloped country, I'm afraid if my doctors know about this issue.

[HollyHeski Administrator]

Hi and welcome - really sorry for your loses. Its very common to have APS along side other auto immune illness (I see you are on the forum for thyroid). APS/Hughes can be checked with blood tests, repeated 8 weeks apart.

Your doctor may know of this desease, have a chat.

What Country are from?

[rayhanalopa in reply to HollyHeski]

Hi HollyHeski

Thanks.

I'm from Bangladesh. Hope to find out the reason behind my miscarriages.

Stay blessed.

[HollyHeski Administrator in reply to rayhanalopa]

You may never find out why, still worth getting the blood tests done for APS.

The treatment would be daily aspirin and/or heprin once pregnant.

There are many here who have had multi miscarriages to go on to have successful pregnancies.

Stay with us and let us know how you get on.

[rayhanalopa in reply to HollyHeski]

Thanks. I'll.

[charlieab]

Hi

Im sorry to hear about your losses.

I have just done a very quick search on the internet but it seems that there could be doctors with experience of (and expertise in) anti-phospholipid syndrome (APS) at Dhaka Medical College.

Shikha Ganguly

Associate Professor, Department of Obst & Gynae, Dhaka Medical College, Dhaka

Bangladesh

Ferdousi Islam

Professor and Head of the Department of Obst & Gynae, Dhaka Medical College, Dhaka

Bangladesh.

Im just deducing this from fact that thes guys have fairly recently published an article about APS. Though not in a top journal.

Hope this helps.

best wishes

R

[rayhanalopa in reply to charlieab]

Hello Charlieab

Thank you so much for the information. It means a lot...

Stay blessed

[charlieab in reply to rayhanalopa]

You're very welcome. And good luck.

[MelissaHedden]

Hi! I do hope you manage to find the reason for your recurrent miscarriages.

I have APS and went through a terrible history of 10 miscarriages before my diagnosis. I had 1 beautiful baby boy without any complications, they say 1 in 10 is viable, but after much heart ache and stress I’m pleased to say I have 3 beautiful babies. A 2 years old and two 1 year olds. After the my diagnosis I had planned pregnancy with low dose aspirin (right up til birth), prednisone (to stop my immune system for 12 weeks), and heparin injections for 36 weeks. There is hope so be persistent in your diagnosis. Good luck and my you be blessed.

[rayhanalopa in reply to MelissaHedden]

Hello Melissa

That was terrible... I hope to be strong like you.

Thanks for sharing your story. It gives hope. God bless you

[Apspain]

Oh Wow...... Well mu doctors here didnt know what was wrong with me ...so after completing how to do my job (full on brain fog), getting lost in familar places and several miscarriages. I went to mumbai and was diagnosed after seeing an gynae and a dew blood test. The consultant fee cost me a mere £8 and not much for the tests and i came back with my diagnosis. Ive since been back and been to a hospital in mumbai called lailavati where the immune specialist actually studies and worked alongside some doctors from Lupus unit at Guys. Bangladesh is very well developed.

[rayhanalopa in reply to Apspain]

I love my country.

[Apspain]

Call Dr Gursahni @lailavati im sure he will direct you. or the original doctor I saw was Dr Nozer in Bandra . He will always deal with you by phone and email and direct you to which blood tests etc. I know this as my full results came in after i left and he corrresponded on email. His consultancy fees were 800rupees

[rayhanalopa in reply to Apspain]

Can I communicate with them through email? Can you please give me their contact information?

[Apspain in reply to rayhanalopa]

babychakra.com/mumbai/dr-no...

[rayhanalopa in reply to Apspain]

Thanks a lot. Stay blessed 😇

[Apspain]

you too ...worst case scenario look up blood tests needed and get tested than you can work on solution as I know there you can get them to come home to do tests without dr request. personally i would go for

1) ana ,

The

three APS antibodies:

1)anticardiolipin,

2)beta-2 glycoprotein I (β2GPI),

3)lupus anticoagulant

I am not advising to self medicate but most people start on baby aspirin 75mgs and folic acid.

If you are postive for APS than you must condition your body first before conceiving. Also note that people can be negative but still have clinical APS!!

I started with 75mg, folic acid and hydroxycloriquine 400mgs. It wasnt enough for me.

I than had Enoxaparin 60mg daily injected by myself folic acid hydroxycloriquine 400mgs and my miracle is now 4years old 😁.

[rayhanalopa in reply to Apspain]

Congratulations ☺

And I can't thank enough for helping me. Really appreciate your effort and time for helping.

[Apspain in reply to rayhanalopa]

your welcome. I hope you find your answers!

[GinaD]

I hope these suggestions are fruitful. Hope you have your issues diagnosed and treated soon.

On a only semi-related tact— This site does so much good in the world! Thank you Administators and NIH! People from the whole planet come together to help each other!

After reading this I wonder -what can I do to make the world a better place today?

[Apspain in reply to GinaD]

Your so right Gina...without this site and the health unlocked admin..we would all be lost and total recluses by now...just having this forum has given so many of us support whem we have been at our lowest.

[Lure2 in reply to GinaD]

Thank you Gina! You can do what you do today - stay among us please!

Kerstin

[rayhanalopa in reply to Lure2]

I would also like to thank you from the bottom of my heart for all these support which is made possible by your site