Discuss with my Haematologist ? - Hughes Syndrome A...

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Discuss with my Haematologist ?

WendyWoo50 profile image
6 Replies

So at last this Wednesday I'm off to see my Haematologist (who doesn't believe in zero negative APS - I have only had one LA positive only). But def have Hughes Prof D'Cruz st Thomas diagnosed.

My INR is still extremely irratic.

Please any info to help at my consultation?

Try Low molecular warfarin injections?

Blood tests - vit D - vit B12 - ferritin - Thyroid- anything else?

I have the twins story from Prof Hughes.

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WendyWoo50 profile image
WendyWoo50
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6 Replies
HollyHeski profile image
HollyHeskiAdministrator

You seem to have everything ready, the injections are Ldw heperin or clexane.

Take your warfrin record with you and tell them the INR level that you feel healthiest at.

Good luck x

Hughes-Comrade profile image
Hughes-Comrade

Straight to the point, find a new one that does as they would more than likely be better informed.

Wittycjt profile image
Wittycjt

Wendywoo: did you meet with success? I hope so👍

WendyWoo50 profile image
WendyWoo50

No I'm just told they can't do anything

Wittycjt profile image
Wittycjt

Do they finally understand you are positive?

WendyWoo50 profile image
WendyWoo50 in reply to Wittycjt

I think so lol 💋

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