Today I went to see my very helpful rheumatologist, he thinks I and the children should be referred to St T's for that elusive referral, meanwhile my husband went to my surgery to ask our very nice GP for a referral, this for all bases to be covered. The reply, he would try and apply via 'special measures' to the top of the PCT for my referral, as apparently the jury is out to whether Hughes Syndrome exists, and of course me being seronegative, and the likelihood of the children testing the same way. This dangerous, worrying and downright awful. He felt it might be unlikely that we be successful, this in a PCT who boasts loudly that it has 'world class commissioning'!
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