Hughes Syndrome - Learning and support through information sharing

A very worthwhile meeting yesterday to explore information sharing, which I feel will become very valuable and supportive for current and future users. As a family, tinged with 'Hughes Syndrome' including my young children, and also with two other diseases - psoriatic arthropathy and sjogroens on board, to have another avenue of awareness/support etc will hopefully also bring about some very overdue modern change in the arena of patient/GP/consultant awareness.

1 Reply

oldestnewest
  • Very good of you to come along Mary - glad you're finding your way around the site now :)

You may also like...