PSP story

[Independenceday]

My dad has been living with PSP for over 5 years his feet have turned in so unable to walk, his eyes don’t shut even when asleep, his frustration is overwhelming for both him and me, causing him to throw things and swear. It is so very sad to watch him deteriorate daily, what a horrible condition for anybody to deal with.

[AliBee1]

Sometimes there are no words or advice that will help so just sending you all a big big hugs . AliBee xx

[LittleOllie]

It is so sad, my mom had PSP. Please reach out to the charity for support x

[Sun-flowerwearer]

I see from your profile you have just joined this group but also your dad is 5 years in. Have you found the PSPA website as that is full of information and advice. It’s so hard on the people who care without having to handle swearing and throwing things … hopefully your dad is not directing this at you. I’d speak to your GP to see if they can access counselling or prescribe medicines to help your dad too. PSPA may have ideas to help too so I encourage you to ring their support line x

[Independenceday in reply to Sun-flowerwearer]

My dad only got diagnosed with PSP in 2022 with no help from his GP we had been chasing for answers for 3 years I knew something was wrong, but his lovely chest consultant passed his details to a Parkinson’s specialist who diagnosed him originally with Parkinson’s which was a huge relief for both of us, but after a brain scan it was confirmed as PSP. Thanks I will look at the website.

[Dance1955]

I am sorry to hear about your dad i sincerely hope you are getting some help and support its the worst disease I’ve ever seen and no one understands unless they have had a family member going through it take care

[Dosco]

We periodically used Botox injections to control the inward turning of my wife's feet. They should be administered by someone who knows what to do.