My husband has psp and gradually he is becoming more and more stooped over. He looks directly at the floor now, so along with the problems with his eyes, he struggles to see anything.
Is the stooping a psp symptom? I’ve just realised that I don’t think I’ve ever seen it mentioned anywhere.
Hi my mum is the same. Her head used to look up to the sky and wouldn't come down like it was stuck there. Now her head is also facing down towards the floor. My mum also has PSP. I think it may be another horrible symptom. 🌷
Isn’t it a horrible condition? So cruel taking everything away from the patient.
Yes it's really horrible one awful thing after another. My mums foot is also not flat it's bent inwards and she tries to walk with the side edge of her foot when I transfer her. Please take care. 🌷
Hi Red June, I think it is and my husband is the same. He stoops and walks looking down all the time so that alongside the eye problems he has means its difficult for him to see where he is going. When I query it he says he's following my shoes or sometimes my coat. I do think he does this as he always knows the colour I'm wearing. It appears that I'm easier to follow than the effort it takes to look up and the distractions, people that this brings etc I think physically the altered gait and posture is common in PSP from what the neurologist said. I have also noticed a decline in spacial awareness so if you add these into the mix along with cognitive / processing skills changes I can understand the affect. Take care
mum has a stoop with CBD, she also leans to the right, her better side, when sitting or walking😥
my mum has PSP she is stooped and looking down and also leans to the right when sitting, she is unable to walk now and her left foot is turned in and useless now she is unable to move it like her right foot.
Her communication is limited but her mind still as sharp as it ever was which she finds frustrating, occasional words still come out clear but she uses a letter chart to point to what she’s trying to say. This too is getting less effective. We have tried a white board and marker pen but her writing has deteriorated and is so tiny it’s often difficult to grasp what she’s meaning
Anyone else have any suggestions for communication in the later stages.
I too worry very much about communication I have been rolling Ben lifetime friends in to see in the last yr wo so they can see him while he is still talking so sad how am I going to know what he wants he stopped writing months ago I have heard of picture cards but don't know where to find them
My mom is in late stage and has been pretty stooped for at least a year. She is even stooped in the wheelchair. We are constantly trying to get her to lift her head up... it is so obvious she would if she could. If we lift her chin, sometimes it sticks in the that position, but more often than not, it just goes back down.
The OT tried a collar on my husband but it was too big and too hot and uncomfortable for him.
we got Mom a collar as well.. it wasn't too hot -- it was a frame only -- it is actually a very smart design and we had high hopes for it but she wailed when we put it on her and gave up.
yep. My husband was diagnosed with Parkinson’s in 2019 but his decline was so fast and he wasn’t responding like most Parkinson’s patients that 5 neurologists later and several tests , his current neuro said I do t think he has Parkinson’s. She has yet to confirm PSP but all the tests have.
He is stooped , has difficulty swallowing meds at times, has fallen twice in the last 5 months, is incontinent mostly at night, sleeps a lot and drools a lot. I hate this disease! He is still pretty mobile and loves to eat so I’m thankful for that. I have no suggestions for anything!
I’m sorry if this isn’t helpful, but I want to say that my guy went to a chiropractor when his spine started to curve and force his head down. This was in the early stage, so may not be something that can be done later; however, it absolutely helped. I wouldn’t have believed it if someone had told me how effective a few chiropractic treatments could be. His posture was corrected and the pinched nerves that had been bothering him simply ceased acting up. He lost the odd posture and it never came back.
That’s interesting. I don’t know whether I could get my husband to a chiropractor now. He is virtually unable to walk now and it is just about impossible to take him anywhere now.
I’m sorry. It’s very hard to know at what point chasing symptoms is no longer worthwhile, but that is a point we almost all come to eventually. Since fighting generally feels better than surrender, and since there’s strength to be found in fighting, we keep on. I wish I’d seen it earlier; it might have saved some pain. Peace to you.
My husband, Mervyn has been diagnosed with PSP, and he is becoming stooped, he has downward gaze palsy and when he walks he is looking at the floor, we still go for short walks but I have to hold him by the hand as he continually veers to the right so a walker doesn't help, I continually have to pull him to the left and remind him to look ahead as he is unaware of obsticles. His right side is most affected. He keeps asking for a motorised scooter, but I know he would be a danger to himself and others as his spacial awareness is so poor. He can't understand why I won't allow him to have one. I am going to get a manual wheelchair to allows us to go further. From all the replies it looks like it's deffinately a symptom of PSP.
my mum is exactly the same and leans over to her right as she sits. She was saying today that her eyesight is getting worse too…. Such a horrible horrible disease.
She doesn’t like lights being too bright indoors also….
Yes my husband’s sight has got so much worse. It is horrible isn’t it? Everything is being taken away from them.
My husband’s trials are over 
Our battle is finaly over.
Over the pond
