My husband has PSP and has been in respite care for four weeks now. In the next few days he will be moving into a care home permanently as I just can’t manage him at home.
I have been visiting him every other day and the rest of the time seems to have been taken up with trying to get him moved and dealing with social services etc. So I didn’t have any spare time to do the borders outside our flat, so I managed to get a gardener. I was so pleased to get this job done and I thought my husband would be pleased too. Instead he is convinced that I am having an affair with the gardener. He talks about it constantly, getting more and more obsessed with it all. Today I told him that the gardener was going away for work and wouldn’t be coming anymore. I also said I had found a female gardener to which he replied that’s worse still.
I feel like I don’t want to speak to him because he is making me so angry and doesn’t seem to consider all that I have been doing for him
Written by
Redjune1
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That must be so hard for you. ❤️ It is of course the disease which is affecting his thinking. I think you have to adjust what you say so that his brain can cope. It means putting on a bit of an act. Thankfully my mum doesn't have this problem but she does get quite fixed thinking on just a few topics and no longer has much interest in others. Do make sure you have other people that you can offload to when it gets frustrating, or find people through local PSP Forums or counselling. Others on this forum have talked about the anticipatory grief that comes from gradually losing the relationship and person that you knew.
Thanks Messier. I know I need to edit what I tell him now. I thought he would be interested that I’d got the garden looking nice but never thought it would lead to all this.
It's the disease... not your husband. I've had my fair share of questioning covering most situations imaginable. Logic tells me otherwise, but still, I can always find some rabbit hole to go down.
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