New study just out (3/31/23) on natural therapies for tau aggregation (PSP included)

[ShellTaylor]

My father was recently diagnosed with PSP and I have been researching like crazy. I searched all 125 clinical trials on the Government website and all the pubmed articles and studies. This one just came out 3/31/23! It looked at all the studies that have been done on natural supplements, foods, therapies for tauopathy diseases like PSP. It references 240 different studies and summarizes all the proven things one can try. sciencedirect.com/science/a.... See what you think. I've started my Dad on grapeseed extract, turmeric/curcumin, resveratrol, liposomal CoQ10 & NAD, quercetin, fish/krill oil and a few other things.

[Danjast]

thank you for this information I’ll take a read through as any help at all is great and you’ve obviously done a lot of research

[ShellTaylor in reply to Danjast]

You're welcome! I hope it helps, let me know what you think and if you have any success trying any of these.

[Richard33]

ShellTaylor,

Thanks for doing the research. I have bought the full article and will read with interest. One day, one day....

Richard

[ShellTaylor in reply to Richard33]

Great! Good luck! I'm sorry I forgot I had to pay for it. I can provide it if you give me your email address, but probably too late.

[zeyad94 in reply to ShellTaylor]

can you please send it to me

my email: [e-mail]

[Richard33 in reply to ShellTaylor]

Hi,

No problem. I think everyone who is a carer or sufferer in the earlier stages of PSP and CbD should see it. All good advice of what foodstuffs slow down the process of Tau's onslaught. (Red wine is even listed, guys!). Anything to slow the progress down......

Thanks so much again for finding it.

Richard 🙂 🍷🍷🍷🍷

[ShellTaylor in reply to Richard33]

I agree! A lot to learn and I find that the doctors don't tell you any of it, so you have to find it on your own. We did find one neuropsychiatrist who I shared the study with and I'll post his recommendations in a new post for everyone to see, hopefully, and for you here: he said to take 1 gram turmeric, 1 gram quercetin and 2 grams fish oil and 1 TB olive oil per day, and ubiquinol instead of CoQ10 which is the more absorbable form and liposomal if possible. I found a good nano turmeric online which is more absorbable. From my research, ideally the supplements have to be liposomal or nano particle size to cross the Blood Brain Barrier (BBB). I'm going to try these as a start and I also bought grape seed extract which the study talked about at 600mg/day. I also give him liposomal or nano (I'm trying each one) NAD which is very good for mitochondrial health (fatique) which my father suffers w/ badly. You can also get IV NAD which my Dad did once but you have to go regularly for 4-6 wks to make a difference.

[Richard33 in reply to ShellTaylor]

Good luck. Do try everything and hopefully something will help. Ruth also takes CBD oil and Loins Mane mushroom tablets twice a day......

Richard

[ShellTaylor in reply to Richard33]

thank you! Those are on my list too!

[ShellTaylor]

If anyone would like a copy of the article instead of having to purchase it, provide me your email address and I can email it to you. Sorry Richard33 I forgot about that.

[slimweiss in reply to ShellTaylor]

Yes please. [e-mail]

[Vinca9725 in reply to ShellTaylor]

Thank you for being so kind...Please send to: [e-mail]

[HigherLove in reply to ShellTaylor]

Thank you! [e-mail]

[Elsie44]

Yes please. Could I have a copy [e-mail] Thank you.

[ShellTaylor]

With respect to this study, I did find one neuropsychiatrist who I shared the study with and I' he said to take 1 gram turmeric, 1 gram quercetin and 2 grams fish oil and 1 TB olive oil per day, and ubiquinol instead of CoQ10 which is the more absorbable form and liposomal if possible. I found a good nano turmeric online which is more absorbable. From my research, ideally the supplements have to be liposomal or nano particle size to cross the Blood Brain Barrier (BBB). I'm going to try these as a start and I also bought grape seed extract which the study talked about at 600mg/day. I also give him liposomal or nano (I'm trying each one) NAD which is very good for mitochondrial health (fatique) which my father suffers w/ badly. You can also get IV NAD which my Dad did once but you have to go regularly for 4-6 wks to make a difference. Also, my Dad is finding sunosi drug helpful for excessive daytime sleepiness. It's not to be taken everyday but on days we are taking him out he does say it helps. For sleep we just tried lunesta (about the 10th thing we've tried) and I'm hopeful. I'll keep you all posted on that. Of course a lot of this in individualistic, so what works for my Dad may not work for someone else and vice versa.

[superdad1Q]

A GREAT CONTIBUTION INTO THE CAUSE OF THI S DREADFUL DISEASE SHELL. I WOULD ASK FOR A COPY OF THE ARTICAL BUT I LIVE IN ENGLAND AND I KNOW IT WOULD COST A LOT TO SEND I TIVE ACTAULLY HAD PSP FOR OVE R A YEARNOW AND TRIED EVERYTHING ON THE MARKET INCLUDING A FEW THINGS WHICH WERENT (CANABIS ISNT LEGA L HER E) YET I HAVE STRUGGLED ON WITH MY PARTNER WHO UNDERSTANDS ME MORE THAN I CAN UNDERERSTAND MYSELF TO BE HONEST. MY BIGGEST FAILINGIS THE BALNCE AND THE WEAKENESS WHICH HAS LEFT ME UNPREPARED AND POWERLESS AGAINST ON MANY OCCASIONS. ANY WAY I HOPE YOUHAVE SUCCESS IN YOUR SEARCH FOR ANSWERS SHELL .

BARRY XX

[ShellTaylor in reply to superdad1Q]

thank you Barry! So sorry for your struggle. May God be with you. If you would like I can email you that article if you have an email address. Can text the summary here if you’d like.

[Godisgreat5]

Thank you for your comments about your dad’s PSP journey. Your story resonates with me❤️I value your information ! My husband was diagnosed with PSP Nov 2023. It’s rough on us as we were so looking forward to our retirement together. Life certainly can throw some curve balls that hit us hard. It somehow helps me know what lies ahead as I love to research and read and take notes. We so loved to take turns reading to each other from a plethora of different genres. Now we have a new normal to adjust. Some days take my breath away when I see the disease control my once vibrant soulmate. It causes ‘dis ease ‘in both of us. Thank you again ! Somehow hearing others’ real raw stories brings me comfort. Take care of your beloved dad and you too.

Respectfully

Marina from Canada

[ShellTaylor in reply to Godisgreat5]

Thank you so much Marina! So sorry for your struggle! I pray for my dad all the time and pray with him as well. I am glad we can still say God is great.