epileptic attack in CBD

[Tindb]

I have question whether epileptic attacks do occur frequently with CBD.

My wife has CBD since 2017 and as husband I take care of her since then. Just last week she experienced something that looked like an epileptic attack that took about 3 minutes. Thereafter she just want to sleep and that still after a week.

We see a neurologist and have anti epileptic prescibed.

I want to know whether these kind of attacks are common with CBD and what trigger may cause this.

[Helen119]

Hi my husband had epileptic seizures, but he had PSP, he used to have them about once or twice a month, one time he had 7 siezures in one day. He would sleep a lot afterwards and be very vacant aswell.

The doctors never prescribed him any medication for it as it was not regular enough, but they did last for about 3 minutes and then his breathing was affected for about 30 minutes afterwards.

I don’t think siezures are very common with either PSP or CBD as when he started having them I asked on this forum and there wasn’t anybody going thru the same.

Good luck on your journey

Love and hugs xxx

[Tindb in reply to Helen119]

Thanks for responding.

In our case her breathing was affected too and in first instance I thought she was choking, but that turned out not be.

[fishponds]

Hi my husband had CBD and suffered epileptic seizures lasting a long time and each time ending up in hospital medication helped for a while but in the end They could not control the seizures and was put on palliative care and sadly passed away But everyone is different and as your wife’s only last a short while will be better controlled with meds

[Tindb in reply to fishponds]

Thanks for responding.

I guess we'll have to continue with the meds although they make her very sleepy

[Tweetybird21]

Hi,

my Mum had CBD and started having seizures in her last 2 years. I can't say what the triggers were as Mum was in hospital when they first started but they weren't that frequent and didn't seem to bother her too much other than, similar to your wife, she would be very tired for a few days after. Unfortunately, it does seem to be another symptom of this disease.

Hopefully your neurologist can help further.

Best of luck,

xx

[Tindb in reply to Tweetybird21]

Thanks for your reply

We started to use prescribed meds in order to preserve her quality of life as long as possible.

Hopefully she will get less absent within time in order to ease feeding

[Rowan8831]

My husband had CBD and sadly he had seizures during the last 18 months of his life. They didn’t appear to upset him too much and he was prescribed a sedative. The only issue was trying to keep him safe. He was in a hospital bed luckily by this time so couldn’t fall out as they often happened in the evening. . I think it may just be the progression of the disease. I wish you all the best. xx

[Tindb in reply to Rowan8831]

Thanks for your reply

Currently we're in the situation of balancing between the benefit of the prescribed med and it's side effect of sleeping all the time

[Railfan]

I have PSP. I do have a form of Epilepsy that is brought on by stress but haven't had an episode in decades (early 1980's). However, since PSP I have developed what my Movement Disorder Neurologist calls Myoclonic Jerks over my entire body. I don't have them longer than a minute and was having them 3 or more times a day. I'm now under a medication that can treat epilepsy and it has my Myoclonic Jerks down to about 2 a month.

[Tindb in reply to Railfan]

Thanks for responding

My wife experienced a lot of sleep during the day since the seizure 2 weeks ago. Hopefully this will normalize

[OllieFisher1 in reply to Railfan]

Can I ask what medication you are on, because while I do not have PSP, I personally have epilepsy and any medication I have ever taken only stops the major seizures, but have never done anything for the jerks. I also involuntarily scream - its rare, but it does occur say on a bi-monthly basis and more when stressed.

[Tindb in reply to OllieFisher1]

Hi OllieFisher1

My wife has no historical epilepsy, but is is a result of her sickness with CBD.

A neurologist will probably prescibe medicine which is different for every specific situation.

I the case of my wife Keppra 500mg has been prescribed. Since she recently started using it, we cannot yet tell whether it works for her.