My Sister never gave up. She went to exercise room everyday and was always out of bed in the activities room. Playing checkers and the nurses, aids and even her roommate liked her. She kept her sense of humor even thought she could not talk much she could laugh. I was lucky enough to see her a few weeks ago. She lived in Rhode Island and I live in San Diego. We (my other sister-who lives in Michigan met me there for the week) took her out everyday and kept her as long as we were allowed. Until we had to bring her back for bed. I think she had a good time we facetimed with the rest of the family. She got to laugh and enjoy herself. We fattened her up to 86 pounds from 83 but after we left she lost the weight again. She went for a check up with a new doctor a neurologist. He took her off the meds and said they weren't doing her any good. Then she couldn't eat or swallow so the demise happened within the week. It was the choking and not being able to swallow that did her in.
Her daughter was by her side. We were there by phone to say our goodbyes.
It is allows tough at the end when you can't do anything but watch.
Nov. 22, 2021 was her last day on earth. She got this disease when she was about 63 she started to slur a bit. We thought she had a stroke. Misdiagnosed with Parkinson's at first then later it was PSP.
Thank you for this site. I was always hoping for a miracle that they would figure out what causes this disease. Or how to help the chocking. God Bless you all and thank you for the information you passed along.