The final sigh

[Kellsbelles]

My lovely dad finally succumbed to PSP today- pretty much two years to the day he was diagnosed. He had a sudden decline in his health on Monday and after four days alone by his bedside 24/7, he took his final breath with me stroking his head and holding his hand this afternoon. I’m not sure I can ever get over the trauma of the last four days, but I’m glad that I could be there for him in his final days and that he is no longer suffering.

[Alib2408]

So sorry to read about your dad… I am currently watching my lovely dad decline due to this awful disease and it is heartbreaking…. Sending big hugs xxx

[Kellsbelles in reply to Alib2408]

It’s the hardest thing ever but just being there for him when he needs you is all that he will want. You’ve just got to be so strong and keep a smile on your face while you still have him there. If you need anyone to talk to, my inbox is always open xxx

[AngelineAmy]

Huuggss and sorry for your loss. Our mum left us on Oct 25 2019 after 7 years upon initial diagnosis. It was a very tough time for all of us as this disease ravaged mum and in the last 2 1/2 years she had to be placed in an extended stay hospital. I looked after mum at home until the time she needed tube feeding and urine catheter. I wasn't able to be with her in her last moments and that is my biggest regret. However when I think back about how much she suffered , I am glad that her suffering ended. Like many here, this forum allows us to support one another when there is no where else to turn to. Wishing you peace and strength, and May your dad rest in peace. God Bless.

Angeline

[Kellsbelles in reply to AngelineAmy]

Thank you 💜 you looked after your mum incredibly well by the sounds of it- which isn’t easy! My dad has been in a nursing home the last year and a half, as I’ve not been able to care for him myself. I’ve also not seen him as much as I would have liked (due to covid and having a toddler) so I really wanted to be there at the end for him. But the fact you managed to care for her for so long is incredible and you should be so proud- she will have passed feeling so loved.

[Fairygirl13]

So sorry to see your post about your Dad. Sending love to you and your family. Big hugs. Xx

[Kellsbelles in reply to Fairygirl13]

Thank you 💜

[Willowden]

What a lovely photo of you both. I’m sorry for your sad loss but no more suffering for your dad, take care of yourself now. Thinking of youxx

[Kellsbelles in reply to Willowden]

Thank you 💜 my favourite picture of us both xx

[Hidden]

So sorry for your loss. Watching my lovely Mum suffering with this dreadful disease is heartbreaking. Thoughts are with you x

[Kellsbelles in reply to Hidden]

Thank you. Sending you lots of strength for the journey ahead with your mum. PSP is truly heartbreaking xxx

[daddyt]

I'm so very sorry for your loss. A big hug and prayers.

Tim

[Kellsbelles in reply to daddyt]

Thank you Tim. Also, a big thank you for all your help over the last couple of years and all that you do to bring awareness to PSP x

[daddyt in reply to Kellsbelles]

Blessings to you and your loved ones.

Tim

[Hidden]

Sending gentle hugs... Granni B

[Kellsbelles in reply to Hidden]

Thank you 💜

[Sebuly14]

So sorry for your loss. Sending warm hugs to you and your family.

[Kellsbelles in reply to Sebuly14]

Thank you 💜

[Nanny857]

I’m so sorry for the loss of your dad and that is a lovely photo of you both. The last days will have certainly taken its toll on you so please take time to grieve and be kind to yourself.

Lots of love Nanny857xx

[Kellsbelles in reply to Nanny857]

Thank you 💜 I feel a bit traumatised by the last few days to be honest. It’s taking me a while to come to terms with it. X

[Jimjam22]

So very sorry for your loss, sending hugs to all xx

[Kellsbelles in reply to Jimjam22]

Thank you 💜

[Rubikcuber]

So sorry for your loss....but I'm glad that you were able to be with him. Xx

[Kellsbelles in reply to Rubikcuber]

Thank you 💜 me too x

[LuisRodicioRodicio]

A big hug.Luis

[Kellsbelles in reply to LuisRodicioRodicio]

Thank you 💜

[Aprilfool20]

At peace now.can’t wait to be rid as there is no cure and each day is a living hell but he knew he was loved

[Kellsbelles in reply to Aprilfool20]

Thank you 💜 I can’t wait till the day they can find a cure or at least some effective treatments

[Caralime]

I'm so sorry for your loss, it's an awful Illness. my husband passed away peacefully six weeks ago after 7 years of not being well. Initially Parkinson's but then three &@ half years ago Consultant thought possibly PSP? He donated tissue to the Brain Bank so we wait for report. Take care of yourself now. xx

[Kellsbelles in reply to Caralime]

Thank you and I’m so sorry for your loss too. So good of him to donate to the brain bank- I hope you find the answers you’re seeking. My dad was too far gone when he was diagnosed to ask if he would like to donate but they said he presented classic PSP. X

[AliBee1]

I am so sorry to hear about your Dad but so glad that you were able to be with him during his last few days. You will get over the trauma of those days I promise because you will come to see them as a very special time, which people did not get the chance to have during lockdowns, and I am sure that even if your Dad was not responsive he knew that you were with him loving him.Love AliBee xx

[Kellsbelles in reply to AliBee1]

Thank you 💜 hopefully I will come to terms with it eventually. Just so hard doing it all alone. X

[daddysgirl1916]

Sending you lots of love and strength, xxx

[Kellsbelles in reply to daddysgirl1916]

Thank you 💜

[MRSYafffle]

So sorry about your dad, that's a lovely picture. I'm not there yet with my mum but I know from losing my dad that those last days whilst don't fade from memory totally, become less painful in time and the happier memories take over. It did take a long time, you will get there though. Sending you lots of love and lightness ❤

[Kellsbelles in reply to MRSYafffle]

Thank you 💜 yes, at the moment it feels like It’ll never stop hurting. Hoping it gets a bit easier. X

[bazooka111]

I am just now seeing this! I am so very sorry for your loss, and I’m holding space for you and your family. What a journey this has been … sending massive hugs to you! -Kim

[Kellsbelles in reply to bazooka111]

Thank you Kim 💜

[LaCrosse87]

I am so very sorry for your loss. Sending hugs and prayers to you.

[Kellsbelles in reply to LaCrosse87]

Thank you 💜

[BBW85]

So sorry to hear about your loss, I too went through the same experience with my wife last July[2021] as Husband the loss is hard. The last 6 months was fast and furious.

[Kellsbelles in reply to BBW85]

Thank you 💜 sorry for the loss of your wife. I hope life can become a bit more peaceful for you soon x

[Dan81Sheehan]

So sorry for your loss, my father is in the latter stages of PSP. Its such a cruel disease. I tell my father all the time I love him. Peace to you and your family and may your dad rest in peace.

[Kellsbelles in reply to Dan81Sheehan]

Thank you 💜 that is all you can do really- make sure he knows he’s loved and cared for. I’m sure he does. Sending you strength x

[Girvangal]

so sorry for your loss. He was obviously a much loved dad and it sounds as if you were so caring and loving right to the end.

My mum has PSP and I wept when I left her at her care home today as she is going downhill so fast.

I hope you recover in time from your trauma helped by the realisation of how kind and loving you were to your dad at his most vulnerable moments…… xxx