A frightening episode (CBD)

[Bojszi]

Several weeks ago, my husband went to sleep at 9 in the evening, was still asleep at 10 am, 12 noon. Finally around 2pm someone suggested that I try to wake him up, but could not. Eventually, he could respond extremely softly to what was said to him in between garbled speech, irrelevant to anything but his eyes were glazed and looking somewhere, not the person speaking to him or closed. He eventually requested (we finally able to make out among the garbling. something to drink, but still his eyes were closed or glazed. I even fed him in the same condition. Around 6:30 pm, he awoke. He something very softly for the rest of the night, which ended at 5 am when he finally went to sleep. Five hours later, he woke up perfectly "normal", and had no recollection of the events.

When I mentioned this to his primary care doctor, he said that these things can occasionally happen with people with neurological deterioration.

I was wondering if anyone else has or had experienced this kind of episode.

[Pom13s]

That would have been extremely frightening for you….

[Regann]

When this has happened with my husband, who has PSP, it is because he has a urinary tract infection that has developed into sepsis (systemic infection). The symptoms you describe can sometimes result from infection, so I usually call the dr right away when I notice he cannot respond.

[Bojszi in reply to Regann]

Thanks for letting me know your experience. My husband did not have any infections.

[easterncedar]

Something similar happened to my sweetheart, who had PSP, perhaps three times. It wasn't obviously linked to any specific event or change in his condition. His episodes didn't last as long as the one you describe, but began during the day, when he had been awake, then dozed off. The first time it happened I was very worried, as he was upstairs in a rural house, where help was far away. He returned to responsiveness and regained mobility and to "normal" within a few hours and was able to walk down the stairs. We were also told that it was part of his neurological deterioration.

[Bojszi in reply to easterncedar]

Thanks for letting me know this can happen to others as well. Makes me feel a bit better.

[easterncedar in reply to Bojszi]

You’re welcome. That is so much the value of this community, which was a sanity saver for me.