Dont think my mum has long left - PSP Association

PSP Association

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Dont think my mum has long left

River89 profile image
6 Replies

I had to do an end of life plan for the care home my mum is in. Just wondering how long she may have. She is detiriating quickly she can not keep her head up she cant talk just grunts she cant keep her eyes open and has not eaten a proper meal in two weeks

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River89 profile image
River89
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6 Replies
NetballMagic profile image
NetballMagic

I’m so sorry to hear this x Know that you’re not alone..you have support and sympathies here x

Be gentle on yourself during this difficult time.

My heart goes out to you. The day my mom left this earth l had a strong feeling it would be her last. Sounds silly but there was smell of cotton candy & roses in her room. There were no flowers in her room. I know this is not an answer to your question but it is all such a mystery. Sending hugs... Granni B

oilman1 profile image
oilman1

I feel along with you. My wife is about in the same situation (maybe slightly better) and she was put on hospice yesterday. I was told she had 3-6 months if that is any help. Good luck on this journey.

MRSYafffle profile image
MRSYafffle

Take care, sending lots of love, it's very hard to tell. When my father stopped eating though he was suffering with cancer, the end came very fast and I didn't expect it. My mum is still battling this horrible condition. Xx

plieepal profile image
plieepal

The day my mom got her diagnosis, this was one of the first questions that popped in my brain and kept looming like a shadow. She declined pretty quickly, if you care to read my previous replies, you could see a rough timeline, that within a year, she went from fully capable of cooking/gardening to complete bed-bound and entirely on thickened pureed diet. I had to put her in a facility due to the level of care she needs and the difficulty of balancing my own health, work, and caring for her. I was more than worn out, I honestly thought I would be gone before she does.

She can't keep her head up since the early spring of this year, completely lost walking capability around May this year (we used to exercise her walking with two people holding her and let her drag her feet, even just an inch, and no matter how slow the movement is), and I was told by her palliative doctor that she wouldn't be surprised if she passes in the next 6 months.

She is still with me, and we started Hospice in June, there was a few small scary episodes since then but Hospice keeps telling me they don't think she's there yet.

Hope this gives you a rough idea of how things is. One important question to discuss early is whether to have a feeding tube. It's hard to start that conversation but making that choice later without knowing the person's wish is even more heartbreaking, there's just no right or wrong answer in that.

River89 profile image
River89 in reply to plieepal

Thank you for the reply She got diagnosed 6years ago and has been in a care home for the past 2 years. The nurse didnt mention a feeding tube but I know my mum wouldn't want one. Shes tried to end her life twice a good few years back because she didn't want to get to the stage she is at now. She has no life now as she just sits in her chair with her eyes close.

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