10,000 Voices campaign launch this Sunday

[HelenPSPA]

Our new awareness-raising campaign, 10,000 Voices, will be launching later this week on 28 February #RareDiseaseDay

There are three main ways you can show your support on the day, and beyond:

• Write to your local MP, MSP or MS

• Share a pledge selfie on your social media (and tag us in)

• Take Red Flag posters to your local GP surgeries

To get involved, download our free resources, here: pspassociation.org.uk/get-i...

[daddyt]

10,000 Voices + 1 #PSP-CBD Awareness

Let us all in the PSP-CBD community move the dial closer towards treatment - cure.

youtube.com/watch?v=Ea1RF-G...(Not working as expected?)

Tim

[messier in reply to daddyt]

Sorry daddyt the video didn't work for me.

I did take a look at the video from the PSPAssociation, but was deeply disappointed that it's all about PSP. Come on PSPAssociation, how about CBD?? And the video suggests there are all sorts of treatments that can help - nope not true.

[daddyt in reply to messier]

Hmmm? I checked the site's cookies settings as suggested. I'll try again. Treatments? None that I'm aware of. Some symptoms may be managed, but no two people experience PSP or CBD the same. For the record, when I advocate for PSP, it also includes CBD and MSA. But, it's a mouthful every time.

Tim