Death Notice: My husband passed away Monday... - PSP Association

PSP Association

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Death Notice

Artteach10 profile image
53 Replies

My husband passed away Monday after a long struggle with PSP. I used to post and got so much kind and loving help from this group. I took care of him a long time at home but after several falls, night after night without sleep, then I could no longer get him in the car for appointments, he has been in a nursing home almost two years. I have been feeding him twice a day, cutting his hair and nails, and shaving him everyday while he was in the nursing home. He hasn’t been able to speak or move his arms and hands for a long time but up until the last week I could make him react to certain phrases. Covid makes all of this more challenging but it will be all right. The photo is our Thanksgiving dinner together.

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Artteach10 profile image
Artteach10
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53 Replies
JantheNana profile image
JantheNana

So sorry to hear of your loss. My husband passed 3 yrs ago and I cannot imagine how I would have coped with a pandemic while caring for him. I wish the best for you. Take care of yourself now.

Artteach10 profile image
Artteach10 in reply toJantheNana

I am a nana too. Thanks

Artteach10 profile image
Artteach10 in reply toJantheNana

I really had to pull strings to even get in the nursing home. Thanks and take care❤️

Fjrose2 profile image
Fjrose2

Sorry you have to join or club. Your story sounds alot like mine. I lost my wife to PSP just three years ago.

Artteach10 profile image
Artteach10 in reply toFjrose2

The stories all end the same in this club. Thanks

LostinHeadSpace profile image
LostinHeadSpace

I'm so sorry for your loss. I'm sure it will be sinking in for a while.

Artteach10 profile image
Artteach10 in reply toLostinHeadSpace

Thank you.❤️

Denisejoy1 profile image
Denisejoy1

Sorry for your loss. Sending you much love and strength at this difficult time x

Artteach10 profile image
Artteach10 in reply toDenisejoy1

Thank you.

Hiking13 profile image
Hiking13

I am so sorry for your loss. Take good care of yourself now as grief is a difficult journey too. I lost my husband a couple of years ago and am still finding it all so difficult to deal with especially with all the time I spend alone due to the pandemic.Love Sarahxxx

Artteach10 profile image
Artteach10 in reply toHiking13

I’m sure , part of my heart went with him.❤️

Hiking13 profile image
Hiking13 in reply toArtteach10

I think you are probably right but I promise you that once the rawness has passed you will find a new way of coping but it’s hard. The thing to remember is nobody can take your happy memories away from you. Take care and stay in this group as it really helps everyone is so supportive. Sending you lots of love and hugs xxxx

Ettavb profile image
Ettavb

I’m sorry to hear of your news. ❤️

Artteach10 profile image
Artteach10 in reply toEttavb

Thanks❤️

A big hug.Luis

Artteach10 profile image
Artteach10 in reply toLuisRodicioRodicio

Thanks❤️

Gemmadog profile image
Gemmadog

So very sorry for your loss x

Artteach10 profile image
Artteach10 in reply toGemmadog

Thanks❤️

Hdee profile image
Hdee

Sending you love during this tough time x

Artteach10 profile image
Artteach10 in reply toHdee

Thanks❤️

Melhukin profile image
Melhukin

So sorry for your loss x

Artteach10 profile image
Artteach10 in reply toMelhukin

Thanks❤️

AJK2001 profile image
AJK2001

Thinking of you. xxx

Artteach10 profile image
Artteach10 in reply toAJK2001

Thanks❤️

Heady profile image
Heady

Sending big hug and much loveLots of love

Anne

Artteach10 profile image
Artteach10 in reply toHeady

Thanks Heady

AliBee1 profile image
AliBee1

What a super gown he has on. A real memory. I am so glad that you were able to be with him. I am so sorry to hear your sad news. My thoughts are with you. Take care and look after yourself now. Love AliBee

Artteach10 profile image
Artteach10 in reply toAliBee1

Thanks AliBee! For all your help through this. I didn’t always post but got so much good advice.❤️

daddyt profile image
daddyt

So very sorry for your loss. Hugs and prayers.

Tim

Artteach10 profile image
Artteach10 in reply todaddyt

Thanks daddy. You have been one of my best reads.

Cinnylou profile image
Cinnylou

So very sorry for your loss. Sending prayers your way.

Artteach10 profile image
Artteach10 in reply toCinnylou

Thanks. Prayers are needed

Marilyn_cbd12 profile image
Marilyn_cbd12

Thank you for sharing the photo. Side-by-side as you were in life and especially in his illness. I am now six months from my own husband's passing. There is an emptiness that will never be filled, yes, but such peace and joy in the memory of the life we shared. I wish you the same comforts. Marilyn

Artteach10 profile image
Artteach10 in reply toMarilyn_cbd12

Thank you Marilyn. My heart is with you❤️

Artteach10 profile image
Artteach10 in reply toMarilyn_cbd12

Thanks for you kind words❤️

ncgardener799 profile image
ncgardener799

Sorry to hear that your husband has passed. The care you gave him even during a pandemic and in a nursing home will help comfort you, knowing your did so much to help him during such a difficult time. May you find peace in the days to come. HUGS!!!!

Artteach10 profile image
Artteach10 in reply toncgardener799

Thank you so much.❤️

Grammy4 profile image
Grammy4

I’m so sorry for your loss of your husband. I lost my beloved husband in December to PSP also. My thoughts and prayers are with you and your family ❤️🙏🏻.

Artteach10 profile image
Artteach10 in reply toGrammy4

Thank you. ❤️

Jellybenz profile image
Jellybenz

Hugs to you. X x

Artteach10 profile image
Artteach10 in reply toJellybenz

Thanks. This disease is so hard.❤️

Nanny857 profile image
Nanny857

I am so sorry your husband has passed away. I'm so thankful you got to be with him in the Home during this pandemic, I'm sure it meant a lot to him and you. You have been amazing in your care for him. Now it's time to take care of you, be kind to yourself and just take one day at a time. I lost my husband just over a year ago and still there are times when I get overwhelmed but then I remember what PSP did to him and give thanks he is no longer suffering.

🙏 and sending lots of love,

Nanny857xx

Artteach10 profile image
Artteach10 in reply toNanny857

Thank you. I will take your good advice to heart.❤️

Caralime profile image
Caralime

I'm so sorry for your loss, PSP is just a horrible illness & so hard now when your life has been devoted to looking after him. My husband has been in a Care home nearly 2 years & is in Advanced stage of PSP. His hands are turned in & he doesn't speak he is losing weight every month & now has a delay sometimes with swallowing food. I visited yesterday morning as get Essential visit in his room once a week for 45mins & his eyes were closed all the time. I managed to trim his nails, but no reaction from him. it's so very sad to see him deterioate. Lockdown has had an impact on him & progression of the illness. Best wishes to you & take time now for yourself.x

Artteach10 profile image
Artteach10 in reply toCaralime

What you describe is exactly what I went through. When my husband started loosing weight was last July and I have been allowed to feed him since. He gained his weight back except for the last two weeks. The staff just didn’t have the time needed to spend with him and it did take a long time. He was in the care home one month less than two years . They really didn’t care how long I stayed. They also tested me for Covid twice a week but I just stayed home and was real careful. Have you ever tried feeding him? I also got Him to drink a supplement drink with every meal using a straw that makes the throat muscles stronger even though we had some choking spells. Then I just sit and wait. Will be thinking of you.

Y2U4 profile image
Y2U4

Sorry you lost your husband. Take care of yourself. I hope you have family around you. Prayers.

Artteach10 profile image
Artteach10 in reply toY2U4

Thanks for the prayers❤️Yes family is coming from a distance

raincitygirl profile image
raincitygirl

I’m so sorry to hear your news Nancy; I remember when you joined. Big hugs for the grief time now. Be very kind to yourself ❤️❤️Anne G

Artteach10 profile image
Artteach10 in reply toraincitygirl

Thanks Anne. All my kids and their families left for home on Saturday and now I am alone. It is just a hollow feeling.

raincitygirl profile image
raincitygirl in reply toArtteach10

i can relate Nancy, and I can only say that it’s true what everyone says: this awful feeling of permanent loss and emptiness and even “purposelessness” DOES heal over time to where the memories are warm not just painful, and life is more normal and happiness is possible again. 😊. But please be patient with yourself: it takes a long time - at least it has for me 😉Big hugs ❤️❤️❤️

Anne

Artteach10 profile image
Artteach10 in reply toraincitygirl

Thanks. All the paperwork and corespondents keeps me busy now. A friend gave me a book by Martha Hickman called Healing after Loss and it is one page for thought each day of the year. It does help, but the phone calls from friends are the best and the tears all come fast and furiously. Faith is the ultimate help. Hugs back❤️❤️

Artteach10 profile image
Artteach10 in reply toArtteach10

Thanks. You do feel helpless with these diseases but also time to be with loved ones❤️

ARutzen profile image
ARutzen

So sorry for your loss. Sounds like you did everything you could for him and that is honorable and beautiful! Hope that you find peace within time.

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