It has taken me 2 weeks to be able to tell the final chapter. On the Saturday it was stormy and the palliative care helps came to give Ch a shower. Then the afternoon was visitors. We has not seen them for a long time and Ch wanted to be in the wheelchair to see them. The conversation was full of memories of the times we had had with them but Ch just sobbed . I held his hand and gently tried to calm him. Eventually the visitors went . Next morning the shower team came again and I suggested that maybe they could put him over the toilet. As that was successful they gave him a shower and got him back into bed. We had been using a hoist for transfer. Once in bed he asked them to get me. I was just in the garden. I took one look at his labored breathing and somehow knew what was happening. I sent for one daughter, called the other (20 min away) and called the Registered nurse. I held his hand, stroked his head and told him it was okay. Our daughter held his other hand. He breathed more slowly and he passed away. His skin changed colour and the Nurse agreed that he was gone. It was a quick and peaceful end. It was not pneumonia that killed him it was PSP. Just over 3 years from the diagnosis. He died at home and not alone which is what he wanted,
The time of caring was not easy and without the support from the two caring teams who were there for us we may not have managed.
Now to get through the next stage. You know, the thing about death is that it is so final.
Thank you all for being here . You helped me to not feel so alone.