Posts - PSP Association | HealthUnlocked

PSP Association

9,401 members • 11,429 posts

All posts for November 2019

Is there Blood donations of children for research?

I live in Perth Western Australia. I am very willing to even donate my blood for research if that would help. At the time dad was ill we did not think donating...

I live in Perth Western Australia. I am very willing to even donate my blood for...

Chiko1

•5 years ago

5 Replies

Vitalstim therapies

Vitalstim for dysphagia? Any comments or results ? Please advise

Fortu

•5 years ago

1 Reply

Can PSP be passed onto children?

Hi all. My father passed away with this dreadful disease at 67 years of age 12 years ago. I am still haunted by it. It took so much from my family. Crippled an...

Hi all. My father passed away with this dreadful disease at 67 years of age 12 y...

Chiko1

•5 years ago

11 Replies

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Positive Change

Adjustable bed purchased! A step in the right direction. As some of you know, I have actually been sleeping in the same bed with Mom since June -- in...

Adjustable bed purchased! A step in the right direction. As some of you know, ...

bazooka111

•5 years ago

13 Replies

2 years on

Exactly 2 years ago my very best friend and partner died. I miss her words of wisdom and sense of humour every day. Where has the time gone?

Exactly 2 years ago my very best friend and partner died. I miss her words of wi...

Gadgetgeek

•5 years ago

17 Replies

CBD

Hi all I have joined recently and this is my first post Looks like my husband has CBD we are waiting for MRI scan on the 2nd December before another...

Hi all I have joined recently and this is my first post Looks like my husband ha...

fishponds

•5 years ago

28 Replies

Home Sweet Home

I’m back! Spent the day back with Momma! I missed her so much, but I feel so rested - We had a lovely lunch - or let’s say breakfast; she prefers breakfast at...

I’m back! Spent the day back with Momma! I missed her so much, but I feel so re...

bazooka111

•5 years ago

9 Replies

Progressing very rapidly

Hi my brother Larry having PSP for almost 9 years is on a rapid decline, last 4 moths but now the last 3 weeks he has gone from getting him out of bed, to now...

Hi my brother Larry having PSP for almost 9 years is on a rapid decline, last 4 ...

Tttp

•5 years ago

7 Replies

Vitalstim for dysphagia

is anyone familiar with vitalstim for dysphagia ? Currently on it or any results ?

is anyone familiar with vitalstim for dysphagia ? Currently on it or any result...

Fortu

•5 years ago

4 Replies

Dave is in peace

Dear PSP Family, My David is in peace now. He had intentiste necrosis and he bronco aspirated. He was surrounded by his mother, brother and sister, kids and...

Dear PSP Family, My David is in peace now. He had intentiste necrosis and he bro...

PattyVal

•5 years ago

28 Replies

Up before the Sun

Caught this other day. It was amazing in person but first couple pictures I tried didn't do the colors justice. I finally got what I was after using a 3...

Caught this other day. It was amazing in person but first couple pictures I tri...

Dadshelper

•5 years ago

14 Replies

Forever Friends - Respite Care

And this is what RESPITE CARE looks like to me! Our friends really have stepped up and allowed this week away for me and my family —- Update: my friends came...

And this is what RESPITE CARE looks like to me! Our friends really have steppe...

bazooka111

•5 years ago

15 Replies

PIP

Hello all has anyone been granted PIP benefit then at review had it stopped please

Hello all has anyone been granted PIP benefit then at review had it stopped plea...

Northstar1

•5 years ago

6 Replies

Voice Therapy

What good is Voice Therapy if after a 40 minute session you ask your loved one what they did during the lesson and they can’t tell you? 🤪 It is a 45 minute...

What good is Voice Therapy if after a 40 minute session you ask your loved one w...

SewBears

•5 years ago

7 Replies

Severe leaning - new way to get patient into bed.

The left leaning was so bad today that Sandy had to get back into bed after only being up for a couple of hours. He was afraid he was going to fall out of the...

The left leaning was so bad today that Sandy had to get back into bed after only...

journeyofjoy

•5 years ago

17 Replies

Do we forget the dental appointments?

Sandy has a 9am dental appointment tomorrow for a deep cleaning (first of two sessions). I just called to reschedule. He has had a terrible day today and I...

Sandy has a 9am dental appointment tomorrow for a deep cleaning (first of two se...

journeyofjoy

•5 years ago

14 Replies

It is nearly Christmas Already.

How are you all? I don't know how the time is flying by since March when I lost my J. Life is very lonely, very hard being all alone when everything has...

How are you all? I don't know how the time is flying by since March when I lost...

Escada29

•5 years ago

8 Replies

New Interactive Resource For PSP & CBD

PSPA are thrilled to launch their new online interactive resource aimed at helping health and social care professionals (HSCP’s) involved in caring for people...

PSPA are thrilled to launch their new online interactive resource aimed at helpi...

pspa-helpline

PSPA•5 years ago

4 Replies

Thanks for your suggestions

Thanks to everyone,I now have some ideas to go forward with.Acorneater.

acorneater

•5 years ago

1 Reply

Suggestions please

I have always enjoyed Christmas especially buying gifts for my nearest and dearest.In happier days I have bought my wife gold,clothes, shoes,handbags,and...

I have always enjoyed Christmas especially buying gifts for my nearest and deare...

acorneater

•5 years ago

16 Replies

Collect Stamps for PSPA

PSPA are collecting stamps in the UK to raise money. They accept any stamps (UK or foreign) in any condition. This is an easy thing for us to do. I've put a...

PSPA are collecting stamps in the UK to raise money. They accept any stamps (UK ...

AJK2001

•5 years ago

2 Replies

Amazon

If you shop on Amazon, if you log in via smileamazon you can select a charity that they will donate to. If you type PSP there is a select option. This is in...

If you shop on Amazon, if you log in via smileamazon you can select a charity th...

Unicorn2022

•5 years ago

6 Replies

Mobility

Hi everyone Just wondering about when LO's have lost their mobility. Was it sudden or gradual. Was it as they began to sleep more & became weaker. Or more due...

Hi everyone Just wondering about when LO's have lost their mobility. Was it sudd...

beau1988

•5 years ago

23 Replies

CBD OIL IN PARKINSINS.

what do you think about useing CBD for Parkinson's Disease.Is it safe to use and does it really help? Thank you very much to anyone who answers.

what do you think about useing CBD for Parkinson's Disease.Is it safe to use and...

MAYLOU

•5 years ago

8 Replies

Larry is home

He’s sitting on the shelf in the living room. It feels good to have him back. No idea what will be done with his ashes. The idea has not presented itself as of...

He’s sitting on the shelf in the living room. It feels good to have him back. No...

Hidden

•5 years ago

50 Replies

Advice on breaking PSP to my father in a way he can understand.

Hello, my dad was diagnosed with PSP yesterday, a friend went with him as I was unable to attend (I have a young baby) He was sent home with a print out about...

Hello, my dad was diagnosed with PSP yesterday, a friend went with him as I was ...

Kellsbelles

•5 years ago

41 Replies

My sister

Very proud of my sister Brigid and her recent award............... https://youtu.be/g1zE5UzmHWI

Very proud of my sister Brigid and her recent award............... https://youtu...

Bargiepat

•5 years ago

12 Replies

Another Sunrise

We have lost cherished members over the last few months and it got me to thinking no matter what happens we continue forward. I was going through some recent...

We have lost cherished members over the last few months and it got me to thinkin...

Dadshelper

•5 years ago

14 Replies

How is this going to go?

I saw my Dad today. I don’t think I was ready for the change in him. Early days ... what is ahead?

I saw my Dad today. I don’t think I was ready for the change in him. Early days ...

Saddaughter

•5 years ago

9 Replies

My mum.

Hi i'm lyndas daughter. As you know from my mums feed my lovely grandma died. That by it self was hard on our little family. It was after my grandmas funeral...

Hi i'm lyndas daughter. As you know from my mums feed my lovely grandma died. Th...

dollydott

•5 years ago

31 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2019

Is there Blood donations of children for research?

Vitalstim therapies

Can PSP be passed onto children?

Positive Change

2 years on

CBD

Home Sweet Home

Progressing very rapidly

Vitalstim for dysphagia

Dave is in peace

Up before the Sun

Forever Friends - Respite Care

PIP

Voice Therapy

Severe leaning - new way to get patient into bed.

Do we forget the dental appointments?

It is nearly Christmas Already.

New Interactive Resource For PSP & CBD

Thanks for your suggestions

Suggestions please

Collect Stamps for PSPA

Amazon

Mobility

CBD OIL IN PARKINSINS.

Larry is home

Advice on breaking PSP to my father in a way he can understand.

My sister

Another Sunrise

How is this going to go?

My mum.

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive