Posts - PSP Association | HealthUnlocked

PSP Association

9,561 members • 11,524 posts

All posts for November 2019

At last a Syringe Driver

Mary deteriorated over the last 2 weeks and, after persistent nagging, she was fitted with a syringe driver yesterday and is peaceful. She developed a chest...

Mary deteriorated over the last 2 weeks and, after persistent nagging, she was f...

Willow_rob

•5 years ago

18 Replies

Incontinence and bladder issues.

David is not able to empty his bladder anymore. A catheter was put last Sunday temporary and the urologist will do some test next week. I appreciate some...

David is not able to empty his bladder anymore. A catheter was put last Sunday t...

PattyVal

•5 years ago

5 Replies

Here we go again

Hospice nurse stopped by yesterday, told mom that dad has some mottling in his knees, the nurse wanted to let the family know the end was near, could be days,...

Hospice nurse stopped by yesterday, told mom that dad has some mottling in his k...

bgentges

•5 years ago

7 Replies

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Taking a break ... Time to ReCharge

So ... even though I have tried to find joy every day, reality of this disease has punched me in the face. This has been a tough 3 or 4 days for me...

So ... even though I have tried to find joy every day, reality of this disease ...

bazooka111

•5 years ago

32 Replies

Newly diagnosed with PSP after 45 years

I was wondering if anyone in Staffordshire is suffering with PSP. Many thanks.

Annah33

•5 years ago

10 Replies

I desperately need help living with advanced PSP

Hi, I am new here and was diagnosed with PSP just a year ago after having several neuro diagnosis over 50years I have advanced dysphagia but will not have a...

Hi, I am new here and was diagnosed with PSP just a year ago after having sever...

Annah33

•5 years ago

7 Replies

Medical Marijuana to Register Astounding Growth due to Increasing Therapeutic Applications

Medical Marijuana related more information available@ https://bit.ly/34sBNrR

ReshuGupta

•5 years ago

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Vision getting worse

I've read posts from some of you about vision issues. When Sandy is trying to read, it's blurry. His vision is fine other than trying to read. I just bought...

I've read posts from some of you about vision issues. When Sandy is trying to re...

journeyofjoy

•5 years ago

37 Replies

Card shark ...

The one thing I enjoy daily .. is playing a round of rummy with my Momma. She may be a little slow in processing, but she can STILL PLAY! Just when I think...

The one thing I enjoy daily .. is playing a round of rummy with my Momma. She m...

bazooka111

•5 years ago

9 Replies

Recent quote from Christopher Walken

“Someday you will be faced with the reality of loss. And as life goes on, days rolling into nights, it will become clear that you never really stop missing...

“Someday you will be faced with the reality of loss. And as life goes on, days ...

bazooka111

•5 years ago

10 Replies

CBD newly diagnosed

Hi, I'm Stephanie and I live in the UK. I was recently diagnosed with CBD, two weeks ago, and having read the different posts here I know that everyone is...

Hi, I'm Stephanie and I live in the UK. I was recently diagnosed with CBD, two ...

knitting62

•5 years ago

20 Replies

The cost of a day out!

A day out last week! To Mini Hollywood, the set for many spaghetti westerns, in Tabernas, an hour away. One of my favourite places. How on earth I managed to...

A day out last week! To Mini Hollywood, the set for many spaghetti westerns, in ...

JCRy

•5 years ago

20 Replies

Body acting badly. Is Clonazepam a culprit?

Sandy was leaning so far left this evening in his wheelchair that he looked like he would fall out onto the floor. I actually spoon fed him his dinner so that...

Sandy was leaning so far left this evening in his wheelchair that he looked like...

journeyofjoy

•5 years ago

11 Replies

Lift/Track system is next piece of equipment.

Sara Stedy has been increasingly more difficult for Sandy to use. It's hard for him to straighten up enough to fit into the device. And his legs are so weak...

Sara Stedy has been increasingly more difficult for Sandy to use. It's hard for ...

journeyofjoy

•5 years ago

21 Replies

Do we have a London social coming up ?

I just wondered, as I missed the last one 😉

Ratcliffe

•5 years ago

3 Replies

Weighted blankets used in dementia

My husband has PSP and dementia. I saw a programme about weighted blankets for insomnia but have just seen suitability for dementia and also for disturbed...

My husband has PSP and dementia. I saw a programme about weighted blankets for i...

jabberwocky45

•5 years ago

5 Replies

Her wings are ready.

At 17:52 yesterday evenings, my mums wings were finally ready. We could not have hoped for a more peaceful passing. Her family were all around her, she took...

At 17:52 yesterday evenings, my mums wings were finally ready. We could not have...

Sarah1972

•5 years ago

54 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for November 2019

At last a Syringe Driver

Incontinence and bladder issues.

Here we go again

Taking a break ... Time to ReCharge

Newly diagnosed with PSP after 45 years

I desperately need help living with advanced PSP

Medical Marijuana to Register Astounding Growth due to Increasing Therapeutic Applications

Vision getting worse

Card shark ...

Recent quote from Christopher Walken

CBD newly diagnosed

The cost of a day out!

Body acting badly. Is Clonazepam a culprit?

Lift/Track system is next piece of equipment.

Do we have a London social coming up ?

Weighted blankets used in dementia

Her wings are ready.

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive