PSP takes another wonderful person - PSP Association

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PSP takes another wonderful person

Servena03 profile image
Servena03
โ€ข23 Replies

Yes my family, I haven't been on this blog for a couple weeks, found it too difficult, my wonderful John was E.O.life for two weeks,after a chest infection,but finally gave up the fight on Sunday at 11pm, me and my daughter was able to hold and cuddle him right to the end. My son came from America just a couple of days prior, John wasn't able to converse then but as soon as he heard his voice he was holding his hand and squeezing. Maybe not right thing to say but it couldn't have ended better for us all. Yesterday was so so painful never felt like this in my life, messages flooding in such an admired man.

Poignantly, my granddaughters partner is running the Bournemouth marathon next Sunday for PSP, he's never ran before, but is now fully inspired, I have been invited to go too to encourage him on, hope I have the strength to do it, John I'm sure will be behind me helping me on for such a cause.

Sending wishes to all who is suffering this horrible disease my John no longer has to suffer. heartbroken Jean๐Ÿ’”๐Ÿ’”xx

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Servena03 profile image
Servena03
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23 Replies
โ€ข
enjoysalud profile image
enjoysalud

The bittersweet of losing a loved one to PSP.

Joy that they are no longer suffering and the pain that we can no longer talk to them with expectation of a response.

Los Angeles, CA, USA

Hiking13 profile image
Hiking13

I am so sorry for your loss but he is no longer suffering now. Be kind to yourself and the best of luck to your granddaughters partner, if you can find the strength go along as itโ€™s good to do something different- I found it helped my grieving to get out even though it was so hard. Sending you lots of love

Sarahxxx

Katiebow profile image
Katiebow

After all of his suffering he experienced a loving and peaceful death surrounded by his family, its what we would all like at the end our lives. It will actually give you comfort knowing he died peacefully, I know it did that for me. Sending much love to you all and good luck to your granddaughter.

Kate xx

kenh1 profile image
kenh1โ€ข in reply toKatiebow

Thank you Kate your reply echoes what I was just planning to write. You are all in my prayers at this moment.

Dickenson2 profile image
Dickenson2

Very sorry for your loss but the end of suffer8ng for both of you. Good luck with the marathon. Our grandson ran the London marathon 8n April for PSP

Jimjam22 profile image
Jimjam22

So very sorry xx

AnneandChris profile image
AnneandChris

Jean, my heart goes out to you. I'm sure that being surrounded by his loving family comforted him in his last hours. Take heart, he is now free from this cruel disease.

Hugs

Anne

doglington profile image
doglington

Condolences to you and your family. It is a terrible experience. I remember thinking I now really understood what bereft felt like.

Like you it was , and still is , a great comfort that Chris death was peaceful and surrounded by his family.

Big hug for you Jean.

Love from Jean x xx

A big hug.

Luis.

AJK2001 profile image
AJK2001

Thinking of you all at this sad time. xxx

Tunupup profile image
Tunupup

We know exactly what your going through. I lost my identical twin sister. The hurt never goes away. It's a cruel cruel illness. Love to you all xx

Heady profile image
Heady

Dear Jean, I am so sorry that John has passed away, may he rest in peace, finally free from this evil disease.

Of course it's the right thing to say, that the end was exactly how you would have wanted. It's the one guarantee in this life that we die. Why wouldn't we want to spend our last moments with our loved ones holding us and telling us they love us. I know that's how I want to go. Steve also had this luxury, his daughter was over from the States, was due to go home the day he died, I am sure he chose his moment. I hope he did, it still gives me so much comfort, even now, nearly three years later.

I hope you manage to get to watch the Bournemouth Marathon, naturally, you will be sad, but equally so proud, knowing that the money raised may actually stop this evil disease wrecking other families, like it has ruined all of ours. There will always be that final pound that will tip the scales in our favour.

Look after yourself, this grieving lark is bloody tiring, the only way to do it is, YOUR way.

Sending big hug and much love

Lots of love

Anne

georgeg25 profile image
georgeg25

My sincere condolences to you all in your loss. Sending prayers that you find peace and comfort. ๐Ÿ™๐Ÿ™๐Ÿ™

daddyt profile image
daddyt

So very sorry for your loss. Hugs and prayers.

Tim

crab2093 profile image
crab2093

Sad to see the end of a wonderful chapter. I hope it is not too difficult to start the new chapter. Take care and love your memories.

Cuttercat profile image
Cuttercat

This disease etches itโ€™s mark into our hearts but heโ€™s free from it now. Please take care of yourself and lean on your family there and here. We are here for you.

Bless you and condolences

Cuttercat

Dadshelper profile image
Dadshelper

You and your family have my deepest condolences. I am glad he was with loved ones at the end.

Ron

eurolynch profile image
eurolynch

Xxx

raincitygirl profile image
raincitygirl

My most sincere condolences for the loss of your dear man, Jean. So good that he had you all close to him for his final time.

Now a whole different hardship begins: it will seem unbearable at times, but our experienced members tell us that life will assume colour again some day. Have faith. I wish you healing and health.

Anne G. โค๏ธโค๏ธโค๏ธ

Servena03 profile image
Servena03

I have just gone on to my computer, I know it's late, but just one day later I found I have 18 replies ๐Ÿ˜ i am so overwhelmed, I have been so busy today with visitors, messages and cards, also tried making some funeral plans. I live in a caring home, and I took the plunge to visit the lounge and meet our other family the tenants, who are all upset too,somehow I was strong and held it together, and then ventured to the supermarket that was very hard, my daughter and granddaughter are so wonderful, staying with me day and night not leaving my side, we have had so many talks and tears over all our memories, we were married for 57yrs.

Thank you all so very much for your wonderful wishes and condolences, they are so comforting.

I hope I can still help those of you who are still caring for your loved ones and look forward to your guidance for the future.

Regards to all Jean ๐Ÿ™‹xxx

Cazash profile image
Cazash

My thoughts are with you jean.

If tears were diamonds we would all be rich beyond our wildest dreams .....

Many will be shed but capture a few as treasured memories of those loved and lost.

His fight is done and PSP has taken another fantastic person well before their time

Take strength in the coming days and weeks by the love and support of those around you

We lost dad (also John) in July this year and still even now something reminds us and those diamonds ๐Ÿ’Ž arrive again

Good luck for the run. May johns wings lend speed to your granddaughters partner. Heโ€™ll be running with the wings of an angel helping him every gruelling step

Good luck. Stay strong and let the ๐Ÿ’Ž ๐Ÿ’Ž fall

Caz x

Servena03 profile image
Servena03โ€ข in reply toCazash

Oh cazash, how wonderfully put, I will remember those sentiments.

I have had such a busy day again but very successful achieved a lot, I guess all the planning is there purposely to keep us going, but so exhausting.

Had my fictional night time hug on the empty bed and left many diamonds on his pillow, dreading the day they collect that bed.

Your loss is still so new. Guess that PSP still got a hold on us carers and we'll be around to help others here for a while yet,

Jean xx

Cazash profile image
Cazash

My thoughts are with you

If tears were diamonds we would all be rich beyond our wildest dreams .....

Many will be shed but capture a few as treasured memories of those loved and lost.

His fight is done and PSP has taken another fantastic person well before their time

Take strength in the coming days and weeks by the love and support of those around you and take time to look after YOU! Mum and dad have like you over 50 years together and I know how draining caring full time will have been for you too.

We lost our dad in July this year and still even now something reminds us and those diamonds ๐Ÿ’Ž come again.

Sincere condolences, Stay strong and let the ๐Ÿ’Ž ๐Ÿ’Ž fall

Caz x

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