New stsge

[Krmaier6896]

Hi all, a new stage we are going into. Sam was fitted with a peg tube over a year ago. We have been giving him 5 containers of Jevity. One & half at 7:00 am & 11:00 am. One at 3:00 pm & 7:00 pm. In the past 2 weeks it seemed the feedings in the morning were too much for him so we took an entire one away because of choking. We believe it was backing up. Of course he can’t cough & he’s been making awful noises trying to clear his throat. Every feeding is getting worse. Does anyone have an suggestions as to what Sam can take for nourishment. I’m afraid he’ll want to stop eating altogether. Also he has been running a slight fever the past couple days. Does anyone think it could possibly be going into pneumonia? Of course, a doctor visit is probably soon. Just like to throw this out to you all cause getting I’m frustrated. Sam also is taking a lot more meds for severe pain. So sad 😢😢😢

[PSomani]

Hi. I am in India and my mum has a peg since 2 years. What we figured over a period of time is that there tends to be a lot of flatulence - either on account of extra intake of the powder or at times on account of a tummy not cleared. Giving her antacid medicines with every meal worked along with reducing the intake to match her physical requirements .

The reflux on account of this also can enter the lungs and thus cause pneumonia. Since patients can be weak to cough up.

Depending on what’s permissible there , suggest you reduce the intake and start an antacid with each meal. If possible , a Xray may help indicate the level of haziness in the lungs leading to next steps.

Something that worked a bit for my mother was a bit of black pepper oil being applied on the chest ... however that needs suction to remove the phlegm being thrown out from the lungs ... so apply it only if you have the means to remove the phlegm coming out.

Hope it helps

All the best

Anshuman

[kenh1]

We had similar problems with my wife. The District Nurses called out the hospital dietician who changed the feed and the doctors/nurses changed her medication to deal with the side effects. We had no further problems. I no longer have the details but I think she was put on a lower calorie feed.

[NannaB]

While my husband had his PEG, he was still eating flavoured smooth yoghurt, ice cream which he liked with Bailey’s poured over it, chocolate mousse, and anything of the same consistency. All nutrients went through the PEG so I didn’t worry about what he ate but just gave him things he liked and could swallow. He had these until the day he decided he didn’t want to live any longer and all food and water was withdrawn after he indicated this is what he wanted. He never choked with these foods and never had pneumonia. I hope you find something he likes and can eat safely.

XxxX

[Javan]

To peg feed the body needs to be sitting in a tilted position above thirty degrees. This position needs to be kept for as long as possible after feeding. Try to give the feed slowly. We found this worked best. I hope this helps.