My sweetheart and soulmate said his final goodbyes on Wednesday evening May 29. He contracted a nasty upper respiratory infection the beginning of May and due to his PSP could not clear his lungs. Was admitted to hospice care at home on May 3 and put on oxygen 24/7. After a few days recovery from oxygen deprivation he refused comfort meds of any kind claiming no pain. My family kept reminding me that anyone who could run 18 marathons had to have a very high pain threshold, not to worry. So thankful both of our grandkids and their parents could visit us in April from Medellin Colombia and Dülmen Germany. Jr was able to return on May 7 and was with us through the end. Ever since Oregon adopted the option of Death with Dignity, Kurt said, if ever he was in a terminal situation he would want to have that choice. With hospice care, he finally entered the 6 month window required by law and began the doctor interview process and 15 day wait period before the final confirmation interview. I could only pray he would remain strong enough in the interim as he noticeably declined each day. He was a man that touched many lives and opened his heart to young men that needed a father figure in troubled times. We had a parade of family, friends and surrogate sons visiting him the last 3 weeks of his life. Remarkably, he rallied every time someone was there. Lucid, alert and interactive, chuckling at their shared memories and jokes. So special to see that sparkle back in his eyes. He lived his life on his own terms and chose his own path in death. We will miss him forever, I am grateful to have shared the past 23 years with him.
Thank you to all who have posted to this site sharing your experiences the past couple of years. It has been an incredible source of encouragement to me enduring the seemingly unending struggle.