Whilst we were on holiday in Devon a couple of weeks ago, my husband experienced a few seizures. Something that he hasn't had before and since then he has been waking in the night, mostly twice a night, with uncontrollable myoclonus jerking. I describe it as that because I'm not sure that they are seizures as he seems concious, not like before on our holiday when his eyes were rolling from side to side and I couldn't rouse him.
The episodes during the night can last up to 40 minutes, which can be very distressing!
All I can do is to hold my husband's hands to stop him from hitting himself in the face. All his limbs are uncontrollably jerking, his eyes open wide, starring, probably wondering what was going on!
I talk to him, trying to calm him and eventually the jerks subside and he normally can go back to sleep until the next one!
My GP has told me to increase the dose of Clonaepam that I give my husband at night to see if it can make a difference.
And that is where we are at the moment.
MY husband is in the very late stages of CBD and I hadn't expect these seizures or whatever they are at this late stage but as I said in my last post, this may be our new normal.
I hate having to watch my husband go through these episodes and not be able to stop them for him. Maybe the Clonazepam will work, maybe the jerking will stop after a bit, or maybe the GP will think of something else to try.
Has anyone else have this happen to someone who they care for with CBD or PSP and what medication if any has worked?
Any help or suggestions would be great.
Love to you all