The PSP Chronicles Winter Update - PSP Association

PSP Association

9,665 members11,572 posts

The PSP Chronicles Winter Update

daddyt profile image
12 Replies

December 2017 Just typing the word “winter” depresses me. I’m not welcoming the thought of being shut indoors for the next few months. The dark cloud of Jack’s ...

See More

The PSP Chronicles Winter Update

December 2017 Just typing the word “winter” depresses me. I’m not welcoming the thought of being shut indoors for the next few months. The dark cloud of Jack’s passing hovers over our…

WORDPRESS

wordpressco900.wordpress.com..... I'll try this again

Tim

Written by
daddyt profile image
daddyt
To view profiles and participate in discussions please or .
12 Replies
Marie_14 profile image
Marie_14

Dear Tim and Trish thank you both for sharing your lives with us. I found it so helpful to read your posts when my husband was still alive. I still read them and can see things are getting worse Tim. Not helped I am sure by the sad loss of Jack.

Both of you have been to hell and back already. Life is just not fair is it? Wishing you the strength to see this through. I feel so terribly sad for you both.

Eat as much ice cream as you can!! You deserve it. Just don't eat the dog treats...or anything else you shouldn't Tim. 😀

Much love to both of you.

Marie x x

daddyt profile image
daddyt in reply toMarie_14

Hi Marie, I sent you an email with some pictures of my winter work... did you receive it?

Marie_14 profile image
Marie_14 in reply todaddyt

Tim no I didn't get the email with pictures. Goodness knows where you sent them? 😁. Do you want to try again?

Marie x

daddyt profile image
daddyt in reply toMarie_14

Thank you Marie, it has been a difficult time... especially over the Christmas holidays. Thank you for your suggestion about the ice cream... like there is any other choice lol.

formercarer profile image
formercarer

wordpressco900.wordpress.com/

Just posting the link in case that's useful for anyone.

Thank you for sharing this Tim. I have probably said this before, but my mum was never able to share her thoughts or experiences of PSP with me. Your blog fills some of the gaps. Your determination to be as well and as active as you can be is an inspiration.

Here in the Northumbrian hills we have had a late bout of heavy snow. Quite a shocker as the birds had been busy nest-building and our bees had been bringing back pollen from the early snowdrops and crocuses. Whilst most of the snow has gone, there are still several deep drifts that prevent us from getting our car out. I made the most of it by building a sledge run down the steep hill in front of our little cottage, but like you, I am yearning for springtime, days pottering in the garden and the warmth of the sun on my skin. Hold on! We can't have long to wait now!

With warm wishes and deep admiration,

Janet

daddyt profile image
daddyt in reply toformercarer

So sorry to hear about all the snow this winter in the UK. My snowmance wears off rather quickly (:

easterncedar profile image
easterncedar in reply toformercarer

Thanks for the link, Janet. Reading Tim's blog has gotten me through the extra dark hours of this early morning. I really dislike the first day of daylight savings time. If I had my way we'd move the clocks ahead an hour on a Monday afternoon!

DeDeDickson profile image
DeDeDickson

Oh My Goodness ... what an awesome blog. I don’t often share too many of these PSP posts with Bob (as I’ve said before) but had to share some of your paragraphs with him ... we laughed and we cried. In our pretense that life is normal, it felt good for us to share the humor and sadness of this disease! Thank you, Tim.

xoDorie

daddyt profile image
daddyt in reply toDeDeDickson

I'm glad that you enjoyed it. Since you were able to reach sight I would encourage you to back to the beginning when have the time. it's been quite a journey so far.

Tim

DeDeDickson profile image
DeDeDickson in reply todaddyt

I will indeed!

easterncedar profile image
easterncedar

Wonderful to have you back here, Tim. Sorry, again, for your tragic loss. What an awful thing, losing a child.

I just caught up on your blog, thanks to Janet's providing the link. My iPad is running out of juice now, but you got me through another sleepless night. I'm grateful for your shared experience and insight. I deeply admire your stubborn resistance to PSP, and your ability to write so clearly and honestly. I enjoy your humor.

But while I trust your experience on drinking Listerine, I prefer to stick with even cheap whiskey -although, strictly speaking, maybe taking a shot of Listerine wouldn't mean breaking my Lenten abstinence...hmm...never mind!

Hang on, Tim. Even here in Maine, spring is getting closer. It will come. My geraniums in the windows are setting buds. There will be color again.

Love,

Sarah/Easterncedar

daddyt profile image
daddyt

Hi Sarah,

It was Listerine 0... all the same great germ killing power as regular Listerine with none of the alcohol. Still, it would have been worth it had it the extra zest.

Tim xx

Not what you're looking for?

You may also like...

Life without PSP

My wife/partner/love of my life, slipped away on 18 November 2017. Four weeks ago last Saturday. To...
Gadgetgeek profile image

The PSP Chronicles

Hi I'm Tim... newer here aka daddyt I'm from small town Ontario, Canada. I'll be turning 60 this...
daddyt profile image

The PSP Chronicles

Tim Brown November 7 at 4:27pm · WordPress · The next installment of The PSP Chronicles... this...
daddyt profile image

The PSP Chronicles

My first published book... I'm elated. Tim
daddyt profile image

Sharyn Update - PSP

Hi, just an update on my wife Sharyn who as PSP. When we saw the Neurologist last he and Sharyn...

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.