Hello, nice to meet you all. My husband started to feel unwell around 6 years ago which was attributed to severe anxiety. He started to feel dizzy, and used to fall backwards having no control and banging into whatever was behind him. He also had episodes of shaky hands. At the time he was reduced to walking with a threewheeler outside for about an hour, then returned home so exhausted he practically collapsed on the doorstep. The Doctor said he did not have Parkinsons. Eventually this year he managed with the help of an ambulance to have a Datscan done at a large London hospital which showed abnormality in the brain and he is now presumed to have Parkinsonism - which could lead to PRS or Muscle Palsy etc. they are not sure. He has now passed through the wheelchair stage and has been totally bedbound for two and half years. His condition now is rigidity in the body and hands, only has a slight grip. His brain is not affected, and he is has a very sharp
memory etc. He has to be fed most if his meals, as he cannot grip plate properly, has a proper up and down gaze and his speech is OK. He has tablets for anxiety and depression, dopamine for the stiffness and one or two others. The question is he suffers severe pain all over his body most days, but despite wearing strong pain patches and taking pain killers as well this seldom lets up. He is now 6 years down the line from the first ill effects and doesn't seem to be deteriorating that fast at present. Obviously it is a very despressing life and he is stuck in the same bed all the time. I cannot get him out of bed into a wheelchair or push it myself as it is specially made for him as he has arthritis in the lumbar region. However, the pain he has is not only in the back but all over. Does this follow anybody else's experience of Parkinsonism or the dreadful PSP. I would be interested in your comments.