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PSP Association

9,403 members • 11,429 posts

All posts for September 2017

Hate

My father was admitted to hospital with a suspected chest infection. It then was decided he had aspirated and now has pneumonia. We thought he was showing a...

My father was admitted to hospital with a suspected chest infection. It then was...

•7 years ago

Hi, I'm Bill

Only just heard about the PSP association. I told my wife about it. She was diagnosed around two and a half years ago, she was delighted that there is an...

Only just heard about the PSP association. I told my wife about it. She was diag...

•7 years ago

Newly diagnosed with PSP

After 4 years of seeing countless doctors and specialists for the cause of my "unbalanced" state, i finally saw a neurologist 4 days ago who diagnosed me with...

After 4 years of seeing countless doctors and specialists for the cause of my "u...

•7 years ago

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Updated Article on PSP

For those new here, the attached link is a rather concise article, recently updated, on a variety of aspects of PSP. You or your doctors may find it helpful....

For those new here, the attached link is a rather concise article, recently upda...

•7 years ago

Blaming myself ?

It's coming up to three weeks since my David left me, and I 'm confused. I am spending my time wondering why I didn't do things differently, etc etc. I'm...

It's coming up to three weeks since my David left me, and I 'm confused. I am sp...

•7 years ago

Irma, Where are you?

My Dear Florida neighbors, how are you....Audrey? My heart goes out while prayers go up to all those in the south eastern quadrant of the US AVB

My Dear Florida neighbors, how are you....Audrey? My heart goes out while prayer...

•7 years ago

Telemedicine

Larry had a neurologist appointment last Friday the 8th. I wondered how I was going to get him there. He's getting very wobbly. Wednesday he announced he...

Larry had a neurologist appointment last Friday the 8th. I wondered how I was go...

•7 years ago

To Laugh or to Cry?

Several things have happened lately that have made me wonder. Bs liquid food delivery came. For some reason, it was double the amount. It was stacked on a...

Several things have happened lately that have made me wonder. Bs liquid food d...

•7 years ago

Trazodone no help sadly

Ruth had been taking trazodone for a month - 50 mg to start with, then 100 mg. She does sleep better but the downside is that she is more listless and dizzy...

Ruth had been taking trazodone for a month - 50 mg to start with, then 100 mg. S...

•7 years ago

A newbie with PSP needs advice!

Please excuse me if this is long and wordy, but I have no one to tell this to. I am Bruce. I am 61 years old. I was officially diagnosed with PSP on June 19th...

Please excuse me if this is long and wordy, but I have no one to tell this to. ...

•7 years ago

Losing speech

Are there hints that the ability to speak may be ahead?

Are there hints that the ability to speak may be ahead?

•7 years ago

Jon and son share the love

•7 years ago

Found the answer to my previous question

About the bolts Barry is having. Hope this helps if you are experiencing the same. It's called MYOCLONUS it is a symptom found in many Neurological diseases....

About the bolts Barry is having. Hope this helps if you are experiencing the sam...

•7 years ago

Getting and Keeping CHC

I am currently reading the superb article on CHC which SueBatt placed in a post....

I am currently reading the superb article on CHC which SueBatt placed in a post....

•7 years ago

No hope

Hello all well the other day I called Charlie's doctor to get an earlier appointment. The nurse left a message on the phone saying we can give him a sooner...

Hello all well the other day I called Charlie's doctor to get an earlier appoint...

•7 years ago

Bolts or big jerks ....

Don't know how to describe ??? It's not the shakes as associated with Parkinson's and it's not tremor. Barry has had these bolts for a few years but they are...

Don't know how to describe ??? It's not the shakes as associated with Parkinson...

•7 years ago

The PSP Chronicles Summer 2017 Update

Hello all... "older" members and new members alike. Marie (14) has told me that she had trouble opening the link on my earlier post. Not sure why that happened...

Hello all... "older" members and new members alike. Marie (14) has told me that ...

•7 years ago

Be the first to reply

What is the relationship of CBD and psychosis?

My sister is in her 7th year with the diagnosis of CBD.... likely she had it a few years earlier. Her progress has been slow.... but recently she has frequent...

My sister is in her 7th year with the diagnosis of CBD.... likely she had it a f...

•7 years ago

The PSP Chronicles Summer 2017 Update

I haven't been on the site too much over the summer. I see that we have some new members... welcome. Wish you were here under better circumstances. I've posted...

I haven't been on the site too much over the summer. I see that we have some new...

•7 years ago

CHC Review - funding withdrawn

Well, as I dreaded - after our annual review for CHC I have received the letter today telling us that funding is to be withdrawn. Until I get the copy of the...

Well, as I dreaded - after our annual review for CHC I have received the letter ...

•7 years ago

Safely home from a short break narrowboat holiday..........

I had a wonderful time cruising on the canal that I had made my last voyage on in 2013. My son James worked the locks and is now a 100% a qualified 'Boater' !...

I had a wonderful time cruising on the canal that I had made my last voyage on i...

•7 years ago

Hasn't lost sense of smell

I read often that the sense of smell goes with PD. What about PSP? My hubby still has ahis smelling ability....

I read often that the sense of smell goes with PD. What about PSP? My hubby stil...

•7 years ago

To Audrey and all the other Floridian friends

I just want you to know I'm thinking of you. I have family in Florida, too. Please be safe and let us know how you are doing! Love, Easterncedar (Sarah)

I just want you to know I'm thinking of you. I have family in Florida, too. Plea...

•7 years ago

The window opened and shut again

Last week Friday Charles woke up talking, eating, wanted to go for a drive and then to the grocery store. He called both of his brothers and talked with them!...

Last week Friday Charles woke up talking, eating, wanted to go for a drive and t...

•7 years ago

Summer over

Down here in Devon the rusty fingers of Autumn are already insinuating their way into my beloved hedgerows .Bracken is the first to go , pale yellow...

Down here in Devon the rusty fingers of Autumn are already insinuating their wa...

•7 years ago

Another stage for us in PSP

we are approaching a step I wasn't sure if I would be able to handle. It's all about his bathroom dutys, i know it must be harder on him then me.it just...

we are approaching a step I wasn't sure if I would be able to handle. It's all a...

•7 years ago

Early diagnoses of PSP may be a blessing.

My Husband Barry was diagnosed 10 months ago with PSP after been misdiagnosed 4 years previously. His health has deteriorated very quickly these past few...

My Husband Barry was diagnosed 10 months ago with PSP after been misdiagnosed 4 ...

•7 years ago

Im newbi

I have just been diagnosis PSP. I am 74 years old.stumbled across this(or my wife did) We live on a few acres, and am very active. Not been able to find out...

I have just been diagnosis PSP. I am 74 years old.stumbled across this(or my wif...

•7 years ago

PSP Grant

I have just received an email that the Masonic Charitable Foundation have granted the PSP Association £25000. Cannot remember who posted for us to vote on the...

I have just received an email that the Masonic Charitable Foundation have grante...

•7 years ago

Books

Good evening. I am new here.Have been trying to find out about books concerning PSP.Does anyone have an idea where can I get some information(not using...

Good evening. I am new here.Have been trying to find out about books concerning ...

•7 years ago

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