To Laugh or to Cry? : Several things have... - PSP Association

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To Laugh or to Cry?

Robbo1 profile image
19 Replies

Several things have happened lately that have made me wonder. Bs liquid food delivery came. For some reason, it was double the amount. It was stacked on a shelf in the garage. I thought the shelf looked dodgy so looked for something to shore it up. As I turned away, the shelf crashed down. Heavy boxes fell onto some of my vases, smashing them. One, a 70 th birthday present made of crystal , exploded, shooting glass shards everywhere. Liquid food snaked its way amongst the debris. Luckily, I was not hurt. Unfortunately, the car was. After using over an hour of my respit time to clear up the mess, I went out shopping. When I got back, there was more liquid food in the hall. It had been delivered by the chemist due a prescription from the doctor written by mistake. Talk about rubbing salt into the wound. I thought someone was playing a joke on me.

The next day we were taken to Norfolk by my son and his family for a holiday. The day after this, B spun his chair around quickly, falling out of it onto his side, damaging his shoulder, hand and head, which sustained a nasty gash due to his glasses. 111 were called, the wound was dressed and a district nurse came two days later. We had told the family to go to the beach . I did tasks then sat with B on the patio in the sun, waiting for the nurse. When she arrived, she came out to B, dressed his wound and went back into the house to leave. Unfortunately, the only door into the hall had jammed. She could not get out of the house to her car. She came back to the patio and I advised her that the only way out was to climb over the fence. Luckily, she was youngish and agile, so that is what she did. It was only when my daughter in law got back and I told her, that she pointed to the bottom of the garden and asked, "Why didn't she use the gate?" ( I had forgotten about the gate!!)

We returned from our holiday to find that a three minute power cut had caused our main trip switch to activate, resulting in three freezers and two fridges being full of melted, defrosted food. Nightmare. We were having a convene issue too, at the time, not to mention unpacked suitcases. My youngest daughter came up with the grandchildren , instructed them to look at and do the activities in the comics she had brought them and asked for black plastic bags . She filled these with the wasted food and put them into the bin. Funnilly enough, I had been sobbing before she came, but afterwards I felt quite relieved, not only because the problem had been dealt with, but because It made me realise that I don't need all that food space anymore. I had been made to face the reality that B is no longer on the agenda in the food ordering, and storing department because of his PEG and I had finally accepted this fact.

Sorry this is a long post. I haven't posted for a while, I am still fighting for CHC and struggling with the progress of PSP. Bs hand isn't working or taking weight due to the fall so transferring is difficult . I just thought that in most situations there is something funny or positive if we look for it. Although it often takes me an age before I come round to thinking this!

Big hugs to all my fellow strugglers. XXX

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Robbo1 profile image
Robbo1
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19 Replies
Heady profile image
Heady

Sending big hug and much love.

Lots of love

Anne

Robbo1 profile image
Robbo1 in reply to Heady

Thank you Anne. I can feel it! Hoping you are doing OK? X

Glad you unloaded here. Not a lot of fun having to go from disaster to disaster. Hope things improve.

Robbo1 profile image
Robbo1 in reply to

Thanks Jeff, you are so right! X

Spiralsparkle profile image
Spiralsparkle

I think a bit of laughing and crying is needed. I hope no more accidents happen and you have a period of calm, if that is at all possible!

Robbo1 profile image
Robbo1 in reply to Spiralsparkle

Thank you . I hope so too! X

VronB profile image
VronB

Poor you. Wonderful that you took something positive from it. Xx

Robbo1 profile image
Robbo1 in reply to VronB

It's what keeps me sane- ish! X

daddyt profile image
daddyt

xx

Tippyleaf profile image
Tippyleaf

Fantastic descriptions - have a vision of an action movie glass flying everywhere and a huge crash. So sorry that your special 70 th Birthday vase was involved though.

You are right we have to laugh or cry Most days I manage the former some days like most of us the later.

Do hope B's hand will get back in action in the interim do look after yourself

Love Tippy

Xxxx

Robbo1 profile image
Robbo1 in reply to Tippyleaf

Thank you Tippy. The hospice nurse came yesterday, let me talk and promised. she would put us on a waiting list for a bit of respite. She gave me a hug and a kiss when she left. Together with her kind words, it helped me so much. Better than any medicine could do! X

easterncedar profile image
easterncedar

Oh my! You really were put through the wringer. I'm so sorry. Ordeal after ordeal. Love the image of the nurse hiking herself over the fence, though. Let's hope she never sees that gate! I also hope B has recovered from his fall. You said he injured his shoulder and hand as well as being cut. Does he have any residual pain? (Can he tell you if he does?)

I still have a freezer full of food, too, and cupboards overloaded. It will take me years to get through it. I don't do much shopping these days, though.

Wishing you better luck now that you ought to be running out of bad! Love and Peace, Ec

Marie_14 profile image
Marie_14 in reply to easterncedar

Sarah so do I. As it happens had to buy a new fridge/freezer last week and I realised I hardly use the freezer. So that is one drawer smaller than it used to be! Fridge us bigger though as I do tend to use that. Part of it has a wine rack. Handy but will I ever drink the wine?!

It is hard to get used to this new life isn't it?

Robbo1 don't know how you are still sane after all of that!! Would have cracked up if in your place.

Marie x

Robbo1 profile image
Robbo1 in reply to Marie_14

Hope you are doing OK Marie. As I said to my friend, I can shop for and eat what I prefer now. which is difficult after 49 years.....

XX

easterncedar profile image
easterncedar in reply to Robbo1

Yes, me, too. I hardly know what I like anymore.

Marie_14 profile image
Marie_14 in reply to Robbo1

Yes you are so right!! I don't know what I am buying half of the time. I end up with lots of food but nothing to eat! Like you I was married for 50years when G died. The 51st would have been next month! Not looking forward to that date now.

So much sadness with this condition?

Take care of yourself. Just remember your glass vase was just a thing. All the things G broke used to make me mad until I realised what was wrong. Then I didn't care. I told myself they were just things and life was more important. When you see the poor people who have lost everything in the Caribbean it brings it home doesn't it?

Take care of yourself and take deep breaths!

Hugs to you.

Marie x

easterncedar profile image
easterncedar in reply to Marie_14

As for the wine, you won't know unless you try! ; )

Marie_14 profile image
Marie_14 in reply to easterncedar

Sarah you could help if you were near me! 😉

Marie x

Robbo1 profile image
Robbo1

Thank you Ec. Lovely to hear from you.

Bs hand does not hurt, but he does have a morphine patch and six to eight paracetamol a day, so maybe they mask the pain.

Sending love and good wishes. X

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