Hi. I am new to this community but have been reading many posts in search of some insight that may help me in making a decision that is imminent.
My dad was diagnosed with psp I which he had shown beginning symptoms about 4 years ago. He is now 81. He was admitted to the hospital about 2 months ago due to some bleeding in his brain due to one of his falls. At that time we had a feeding tube placed in order to give him some recovery time. As the 2+ months have now passed, it seems as if the damage has fast forwarded the progression of his condition by 1-2 years and subsequently he has not regained the ability to safely swallow. I do have a medical directive stating no artificial feeding so I am fast approaching a decision on when to remove the tube and what to do afterwards. I'm extremely torn. On one hand I see his general discomfort and with a high probability of choking it pains me to even put that risk upon him. On the the other hand, there are visits to the nursing home (where his rehab is taking place) where I see him mentally alert enough to ask for specific foods and adamant in communicating that he can swallow. It seems like an easy decision after each visit but his alertness condition fluctuates day to day so it is a different conclusion after each visit. The nursing home is going to discharge him soon I am soon facing the most difficult decision I have ever faced.
Wanted to see if anyone had experienced a similar situation. Thank you