Margaret lost her private battle with PSP and the palliative drugs. She slipped quietly away at 0825 this morning, while my back was turned for moment, one shallow breath and silence. After 6 days of being by her side most of the time watching and waiting it was a strange feeling. My thought she knew the holidays were over and the GP would be back. Everyone was fantastic nursing home gave us space the GP and funeral directors coordinated to get M into refrigerator, so UCL brain bank has opportunity to harvest her brain for research, within 4 hrs. Church and grave yard coordinated to arrange a convenient date for service and burial so I was able to tell family of the news and time of funeral in one call. Sons were great leaving me to phone round while they took down the decorations, cleaned, cooked and got house ready for visitors.
My quote is from Pilgrims Progress. "Mr(s) Valiant for truth on learning his(her) imminent death gave his courage and sword to those who could take them but kept his scars and marks as a record to his redeemer then as he(she) approached the river said "Death where is thy sting" "Grave thy Victory" he went into the rive and all the trumpets in heaven sounded for him/her on the other side". RV Williams wrote a very stirring motet "Valiant for Truth" good versions on YouTube.
Though Margaret went quietly as in the still small voice of god (Kings 1) I am certain I heard the triumphant trumpets on the gale from the sea at the time.
I am bereft and have lost my companion and friend I know I will survive but realise there will be some dark days to come.
Thanks for all your help and support over the years. I will continue to read and comment but now I need space. So to everyone best wishes for a great new year and hopefully a cure for PSP. Tim