Morbid subject, I know, but I think important.
Steve,s death was recorded as PSP. My daughter was very surprised as it normally, some silly secondary cause, not to rock the boat.
This did mean, when the registrar entered it, the computer said NO! had to ring half the country, before he could get it entered as the cause of death. It is very important, the government, look at these certificates and causes of death, the more PSP, is entered, the sooner someone starts to take us seriously.
So please try to make sure, all of your support team know this, so can be ready to prime the doctor, if possible. Every bit of awareness, helps the next person.