Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2016

How long should I be patient?

4 weeks ago my mum was referred to the Incontinence team and the community matron but I have heard nothing , should I be chasing the GP by now ? The...

4 weeks ago my mum was referred to the Incontinence team and the community matro...

•8 years ago

What depression meds are the best for someone with psp?

My dad really struggles with depression. When I finally convinced him to take an anti-depressant, I did notice a remarkable change. Now it has leveled out to...

My dad really struggles with depression. When I finally convinced him to take an...

•8 years ago

Hospice respite

Just wanted to say a big thank you to those of you who suggested I contact our local hospice for some respite care for dad. The senior nurse came out today to...

Just wanted to say a big thank you to those of you who suggested I contact our l...

•8 years ago

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Catheter watch

Catheter number seven !!!!! ( since Sept 9th)

Catheter number seven !!!!! ( since Sept 9th)

•8 years ago

Post traumatic stress syndrome!

Hi, our local hospice have very kindly offered me some music therapy sessions. Don't know what that means yet. Only had the first session this afternoon,...

Hi, our local hospice have very kindly offered me some music therapy sessions. ...

•8 years ago

Restless, Sleepless and Impulsive

Charles fell again this week, through the wall in the bathroom. The holes in the house are legendary. Friends donated a lift chair but it smelled so musty...

Charles fell again this week, through the wall in the bathroom. The holes in th...

•8 years ago

Acupunture

Have others had experience with using acupunture for leg pain?

Have others had experience with using acupunture for leg pain?

•8 years ago

Belated update!

It's taken me all week to write this post, I wrote a really long one when we were still at the hospital and then lost the blooming thing! I've been so upset...

It's taken me all week to write this post, I wrote a really long one when we wer...

•8 years ago

George

Well I hate this PSP so much, George is so poorly, nurses coming in to try and dry the phelm up, injections and today patches, he won't eat, because he is...

Well I hate this PSP so much, George is so poorly, nurses coming in to try and d...

Yvonneandgeorge

•8 years ago

Non violent crisis intervention. CPI

I have noticed that care givers are experiencing more problems with loved ones with PSP becoming unreasonable and sometimes violent. I dealt with individuals...

I have noticed that care givers are experiencing more problems with loved ones ...

•8 years ago

Massive meltdown

I'm sooooo upset and depressed about what transpired between my sister and I this pst Saturday. It was a stressful week to begin with due to other life...

I'm sooooo upset and depressed about what transpired between my sister and I thi...

•8 years ago

Coughing and coughing

Mom is having a rough night...she wasn't hungry all day and literally choked down a few bites of roasted potatoes and carrots for dinner. Apparently she had...

Mom is having a rough night...she wasn't hungry all day and literally choked dow...

•8 years ago

Thankyou

Thank you one and all for the good wishes .I believe the panel has 28 days in which to respond .I expect they will take it to the wire they did last time when...

Thank you one and all for the good wishes .I believe the panel has 28 days in wh...

•8 years ago

Sticky convenes

Hi everyone. We're in year 5 since diagnosis now and hubby is having more and more problems with incontinence. We have gotten convene catheters that are...

Hi everyone. We're in year 5 since diagnosis now and hubby is having more and m...

•8 years ago

Swallowing problems

My Dad is almost immobile but so far he is able to swallow fine. When do most people experience swallowing problems?

My Dad is almost immobile but so far he is able to swallow fine. When do most p...

•8 years ago

GEORGEPA

Such a poor weekend I can't even spell my own name now - things are really going down hill . By the way our assessment for CHC funding goes to panel...

Such a poor weekend I can't even spell my own name now - things are really ...

•8 years ago

Inappropriate laughing

My husband has been prescribed a small dosage of Lomizipane to curb this inappropriate laughing that he can't stop , has anyone else had any experience of this...

My husband has been prescribed a small dosage of Lomizipane to curb this inappro...

•8 years ago

Georepa's Weekend

It all seemed to start off well enough , we had a Marie Curie Nurse Friday night but after that it went steadily down hill . Saturday was one of those...

It all seemed to start off well enough , we had a Marie Curie Nurse Friday ...

•8 years ago

PSP-R vs. PSP-P

Has anyone have any information about the different types of PSP, such as PSP-Richarsonian, and PSP-Parkinson type?

Has anyone have any information about the different types of PSP, such as PSP-Ri...

•8 years ago

Last moments of his life.

You are my sunshine my only sunshine you make me happy when times are grey. You'll never know dear how much I love you... please don't take my sunshine away......

You are my sunshine my only sunshine you make me happy when times are grey. You'...

•8 years ago

Warm, sleeveless,cape for husband to wear in wheelchair. Any ideas?

Hi all I have been looking on the Internet for something warm for my husband to wear in his wheelchair. I am finding it increasingly difficult to put a jacket...

Hi all I have been looking on the Internet for something warm for my husband to ...

•8 years ago

Very inconvenient nose flowing

My wife has been diagnosed with PSP several years ago. Many annoying typical PSP syndroma. One that I do not see discussed very much is an accute problem of...

My wife has been diagnosed with PSP several years ago. Many annoying typical PSP...

•8 years ago

Saying hello after 18 months

Hi everyone, this is my first post after joining 18 months ago,my husband George was diagnosed around February 2015 but believe he has had this illness for 3...

Hi everyone, this is my first post after joining 18 months ago,my husband George...

•8 years ago

Lyrica side effects

Was anyone given lyrica for psp pain and what were your side effects? I am starting to think this very expensive drug does nothing for my Dad.

Was anyone given lyrica for psp pain and what were your side effects? I am star...

•8 years ago

PSP and Atropine

Hi everyone been reading your posts for quite some time now but never written before. Thought we could try Alan on Atropine 2 drops last night and he woke up...

Hi everyone been reading your posts for quite some time now but never written be...

•8 years ago

Catheter help please

Yesterdays problem was Bugs not being able to pass urine. We ended up in A&E where they inserted a catheter and discharged her with a leg bag and an add on one...

Yesterdays problem was Bugs not being able to pass urine. We ended up in A&E whe...

•8 years ago

Daycare disaster.

I thought it was all going soooo well. I was really enjoying my days when J went to daycare at a local care home but as the saying goes all good things have to...

I thought it was all going soooo well. I was really enjoying my days when J went...

•8 years ago

Dad is at home with the Lord.

Hello everyone, I have not written in awhile. It is with great sadness to report that my loving father passed away on September 28th after a long painful...

Hello everyone, I have not written in awhile. It is with great sadness to report...

•8 years ago

George

Well George is still really poorly, community nurses have been absolutely fantastic, he is still bubbling on his chest, tablets changed, he was given an...

Well George is still really poorly, community nurses have been absolutely fantas...

Yvonneandgeorge

•8 years ago

Fighting -Part 2

Hi, thanks to my wonderful sister, I am feeling a lot better. Nothing like a glass or three of wine and a good natter! Anyway, it's official, I have done...

Hi, thanks to my wonderful sister, I am feeling a lot better. Nothing like a gl...

•8 years ago

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