My wife has been diagnosed with PSP several years ago.
Many annoying typical PSP syndroma.
One that I do not see discussed very much is an accute problem of nose blowing.
As soon as she eats, her nose starts to flow and of course that gets mixed with her food. Terrible;
She has been taking Humex one hour before eating and panadol.
With less and less effect.
Has anyone any experience in this and any recommendation/suggestion?
I've got PSP and my nose keeps running especially when eating food.
I just make sure I have tissues in my pockets. also when I sneeze I sneeze 4 or 5 times.
It can be embarassing when out for a meal. Sorry i don't have any remedy.
Hi, S sufferers from exactly the same. Only has to look at food and it starts to pour. Especially breakfast. I just keep kitchen roll permanently on his table. Use to really upset me, but so use to all bodily fluids now, this is the least offensive. I can live with snot and it doesn't seem to affect the taste of his food!!!
Sorry, I know that's not the answer you wanted, but S has had to take enough medication to shink a ship, dealing with all the others, there was no way I was giving him any more, for one that was just socially not very pleasant. If it's upsetting your wife, talk to the doctor, if not, I would save your energy to deal with other six hundred million problems, we all deal with on a daily basis.
Sending a big hug, in totally understanding.
Lots of love
Heady
My husband has been in our local hospital for the last month while waiting for home care. The doctor started him on a half patch of Scopoderm 1.5mg ever three days and it has helped with the saliva etc.
My hubby hasn't quite got to that stage yet but he's on the way there. I imagine the amount of paper products, of one kind or another, that we all use must help in some way to keep the timber industry going, at least I think that's where it all comes from. No help to you at all but if you do get an answer please post. Marie
Good morning, I suspect that this is actually an indication of the swallowing problem, which is very common among people with PSP. Are you working with a speech language pathologist? I would highly recommend looking into that. If you find someone with familiarity and experience working with someone who has Parkinson's, they may be more familiar with PSP. Let me know if you need me to help you locate someone in your area .
My poor husband nose ie sore from trying to wipe it all the time and now he has started to cover his nose with a napkin and sniff in and out and trying to get him to stop is very difficult , he has a death grip on his nose.. A very vicous circle .
Good luck
Deidre in BC
My wife's nose would flow every time I she had something to eat. I'm assuming it was because part of her airway would be cut off. It was always embarrassing when out in public, but it didn't take long for me to get over it. It would sometimes be delayed and would come a bit after eating, like while we were in the car. So I always made certain I carried some extra tissues with me. Once she had a PEG inserted, it rarely flowed, unless I made an exception and gave her a little something to eat, like a chocolate kiss.
Ketchupman
We use the herb astragalus. The tincture is easy to take. For us, it works well.
Thanks for your reply. I will order it via Amazon as it is not available in the country where we live. Could you give me the exact description of the product so that I do order the exact same product? What doses are you using?
In another answer, somebody mentioned the use of Scopoderm patches. Had you heard of that before? I will also order it via Amazon.
My wife has a very rare form of a very slow evolving PSP. First symptoms 10 years ago. Final diagnostic 5 years ago. Stopped all the previous medicines aiming in fact at Parkinson. She only takes Co-enzyme Q10 and the methyl formof vitamin B12, the form that penetrates the brain much better. Both products are supposed to improve the oxygenation of the brain.
For the last 12 months, her condition has very much stabilized.
But degradation does not have to be linear. She may be in a period of no-evolution that may stop any time. Who knows? In any case these 2products do not seem to have any negative effect. If at all, they seem to be helping....
My husband has the same problem. I understand that anything to dry it up would have an affect elsewhere. As he suffers with his eyes, I prefer to use lots of tissues. I agree with Heady. Other things cause more distress now. Shows how our standards change !!!
hi mate louis talet every ,morning at breakfast as regular as clockwork off my hooter goes streaming away its very embarrassing in front o f my wife of nearly 60 years and messy and must be unhygienic
I bought some StufF cal.led NASONEX ALLERGY
2 SPRAYS UP EACH NOSTRIL ONCE A DAY SEEMS TO HAVE WORKED BUT DO NOT KNOW HOW LONG IT WILL LAST DO NOT KNOW WHAT THIS STUFF IS CALLED IN YOUR COUNTRY JUST P;OP AROUND TO YOUR LOCAL GP AND HE WILL HELP YOU IM SURE SEE YER GOOD LUCK PETER JONES Q.L.D.AUSTRALIA
PSP SUFFERER
A photo of a good day
Progression ,still no cofirmation
