Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for May 2015

My Hands

Hi all in particular those from Australia - I am getting pain in both hands but mostly right one - is this part of PSP? or is it maybe arthritis? I am using...

Hi all in particular those from Australia - I am getting pain in both hands but...

•9 years ago

Losing Weight

Jim has lost 10 lbs in the last few weeks. He is down to 140 now which his best weight is 170 and his top weight was 190 a year ago. Not sure what to do as...

Jim has lost 10 lbs in the last few weeks. He is down to 140 now which his best ...

•9 years ago

Adventures of V and Georgepa part 3

Woke at 6.30 this morning and lay there listening to the crashing waves on the shingle - pulled back the curtains and looked out on a sombre sea and...

Woke at 6.30 this morning and lay there listening to the crashing waves on the...

•9 years ago

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Adventures of V and Georgepa part2

Well we have arrived ! Got V out of the car and pushed her up the slope in her chair to the top promenade . Viewed the eight steep steps up to Library Cottage...

Well we have arrived ! Got V out of the car and pushed her up the slope in her ...

•9 years ago

Lyme Regis Here we come!!!!!!!

Off to Lyme for a week while they do the wet room . I think it would have been slightly easier organising a three month expedition to The South Pole than...

Off to Lyme for a week while they do the wet room . I think it would have be...

•9 years ago

A Bit of Devon Hedgerow

Just a bit of what is so easily passed by

Just a bit of what is so easily passed by

•9 years ago

Goldfish bowl

I have this feeling that i now live in a goldfish bowl. Swimming around getting nowhere fast. people in and out asking questions have you been out what have...

I have this feeling that i now live in a goldfish bowl. Swimming around getting ...

•9 years ago

Toilet Seats

G now has great difficulty in sitting down/standing up from the toilet seat and if not helped falls back on to the toilet bashing the toilet lid with her back...

G now has great difficulty in sitting down/standing up from the toilet seat and ...

•9 years ago

This is Aunt Bev

got her a hot tub on craigslist free she loves it wish you could all join us

got her a hot tub on craigslist free she loves it wish you could all join us

•9 years ago

Hi Everyone

I missed you all and think about everyone all the time been between California with mom and then in Nevada taking care of Aunt bev they are both in the...

I missed you all and think about everyone all the time been between California w...

•9 years ago

My Week!

Hi folks! Guess what? I actually took some of my own advice and AND actually asked for some help this week!!! It was so hard. (Biggest understatement...

Hi folks! Guess what? I actually took some of my own advice and AND actually a...

•9 years ago

Head Restraint for wheelchair passenger in WAV

Does anyone know where to get a head restraint for the back of my husband's wheelchair whilst I drive him in our new WAV? I have asked the NHS wheelchair...

Does anyone know where to get a head restraint for the back of my husband's whee...

•9 years ago

Wheelchair

Hello. My dad was diagnosed with PSP 5 years ago and is currently in a Nursing Home. They refuse to provide my dad a wheelchair and have said I need to get a...

Hello. My dad was diagnosed with PSP 5 years ago and is currently in a Nursing H...

•9 years ago

Personality change

Although mum has changed dramatically in the last 7 to 8 years personality wise, lately she has become really nasty. She has 1:1 carers and she regularly...

Although mum has changed dramatically in the last 7 to 8 years personality wise,...

•9 years ago

Psp - nan has passed

Well I did as you all suggested, I went to my nan, I held her, told her I love her and talked with my cousins about the memories of our childhood at my nans....

Well I did as you all suggested, I went to my nan, I held her, told her I love h...

•9 years ago

Finally posting!

I have been avidly reading this site since my husband was diagnosed in January and feel that I know many of you. Of particular interest is Eastern Cedar as we...

I have been avidly reading this site since my husband was diagnosed in January a...

•9 years ago

Buttons and snaps

I have found a solution to buttons and snaps and hook on pants that are difficult to manage. I have had buttons removed and Velcro put in place to make life...

I have found a solution to buttons and snaps and hook on pants that are difficul...

•9 years ago

Handy car grab rail.

Hi all, just wondered if my car grab rail idea could be of use to any of you having problems getting your patient into the car. These suction handles are a...

Hi all, just wondered if my car grab rail idea could be of use to any of you ha...

•9 years ago

New here

Hi everyone So glad I found this site and reading other people's stories as been a big help. My dad was diagnosed with CBD around 6 years ago where he had...

Hi everyone So glad I found this site and reading other people's stories as bee...

•9 years ago

Dare i dream

So far this week we have had the hospice key worker the speach and language therapist and now the community matron and they have all said wow don't you you...

So far this week we have had the hospice key worker the speach and language ther...

•9 years ago

First day at Adult Daycare

Hi everyone.....I have been so busy, finally moved in with mom and dad to help out with his care. It has been very tough,he has declined so much. I had to...

Hi everyone.....I have been so busy, finally moved in with mom and dad to help o...

•9 years ago

Any other medication for symptoms ?

Hi everyone.. My mam was put on amantadine 5 months ago and during that 5 month she really seemed to be a lot better, it helped with her swollowing, speech...

Hi everyone.. My mam was put on amantadine 5 months ago and during that 5 month ...

•9 years ago

Are UTI's common in PSP?

Hello, i wonder if anyone can offer some advise please? My mother has had a UTI for the last month. She is now on the 3rd lot of antibiotics and doesn't seem...

Hello, i wonder if anyone can offer some advise please? My mother has had a UTI...

•9 years ago

New PSP Poll

If you are a person caring for someone with PSP or CBD in the UK, please vote on our new poll about your caring role. Check it out under the 'Polls' tab at...

If you are a person caring for someone with PSP or CBD in the UK, please vote o...

PSPA•9 years ago

UTI

How much of the parkinsonism (PSP) affects the suffering patient when it comes to UTI. I had a urologist to say to me when I took my husband UTIs are common...

How much of the parkinsonism (PSP) affects the suffering patient when it comes t...

•9 years ago

More on CoQ10

Well. last Friday we finally made it down to the Lahey Clinic for our several-times-cancelled appointment with the neurologist. The Boston area is finally free...

Well. last Friday we finally made it down to the Lahey Clinic for our several-ti...

•9 years ago

Spring has sprung

The primroses have stretched their fragile necks for one last glimpse the sun before being overwhelmed by the encroaching fresh grass and sinking back...

The primroses have stretched their fragile necks for one last glimpse the sun...

•9 years ago

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