So glad I found this site and reading other people's stories as been a big help.
My dad was diagnosed with CBD around 6 years ago where he had problems with his right arm. Now 6 years on the past 12 months have been awful watching him suffer.
It is braking mine and the family's heart.
Over the past 12 months the right leg is also now effected so his mobility as gone from not to bad to now us having an electric wheelchair made for him.
His speech is effected to the point we can't really understand what he's saying so I just agree :/ and I have noticed he can't drink his drinks as well he has to sip or gets an awful cough.
Now this is my worry dad lives on his own with a care package and of course a family of support. My dad body is braking down but his mind is all there (this is the awful thing) as he still thinks he's able to walk and get up and this has caused some bad falls including him slitting his eyebrow open last week and braking his nose.
His face is a right mess at the moment but he won't give up.
Im worried when he gets his electric wheelchair that he's still gonna try and walk and next time the fall will be a lot worse.
His care package is really good we have a carer there all day with him but I'm thinking he should have 24 hour care? But how do you say this to a man who is all there and he's made it clear to us he not going into a home.
Some advice would be great. I hope my text makes sense im just so down with it all at the moment.
Just to mention he's staying with me and my sister at the moment as the fall last week knocked him for 6 but he has got a lot better this week.