Posts - PSP Association | HealthUnlocked

PSP Association

9,494 members • 11,488 posts

All posts for March 2015

Primroses in Devon

They brightened aday for me - I hope they do the same for you.

They brightened aday for me - I hope they do the same for you.

•9 years ago

clinical trial

There is a clinical trial starting taking 66 people down in san fransico https://clinicaltrials.gov/ct2/show/NCT02133846?term=safety+study+tpi-287+psp&rank=1...

There is a clinical trial starting taking 66 people down in san fransico https:/...

•9 years ago

My wife began suffering from pain in her right leg now her left and her legs buckle when being assisted upright. Is this a usual PSP sympton

Ongoing deterioration

Ongoing deterioration

•9 years ago

Want to take advantage of all our features? Just log in!

or

Mom passed away after 8 years of PSP

My dear mother passed away peacefully in her sleep on the 4th of March after struggling with PSP for 8 years. The last two years were really cruel and we...

My dear mother passed away peacefully in her sleep on the 4th of March after str...

•9 years ago

Mothers day

I would like to wish everyone a happy mothers day Whether you be a mum to a two legged or a four legged baby. Janexx

I would like to wish everyone a happy mothers day Whether you be a mum to a two ...

•9 years ago

Normal pressure hydrocephalus

Normal pressure hydrocephalus, has anyone asked about the similarities to the symptoms of PSP ? I have asked every doctor we have seen and they all dismiss it...

Normal pressure hydrocephalus, has anyone asked about the similarities to the sy...

•9 years ago

Telephone consultation with Prof.

Yesterday I phoned Prof. Ahmet at Izmir Teaching Hospital to report back on his prescribed drug regime. C and I talked about what I would say and agreed the...

Yesterday I phoned Prof. Ahmet at Izmir Teaching Hospital to report back on his ...

•9 years ago

Research studies for PSP

My husband and I traveled to Birmingham, Al about a week ago. They are doing trial studies to help PSP patients. The family is in agreeance with me that we...

My husband and I traveled to Birmingham, Al about a week ago. They are doing tri...

•9 years ago

Alzheimer's disease in mice.

It is very exciting that they have found a cure for Alzheimer's disease in mice. Maybe this will be a link for PSP disease.

It is very exciting that they have found a cure for Alzheimer's disease in mice....

•9 years ago

in hospital a week and staff nurse did not know my mum had psp or what it was

Mum had been in hospital over a week when I eventually spoke to a staff nurse, having a lovely conversation about why they had done scans on mum because they...

Mum had been in hospital over a week when I eventually spoke to a staff nurse, h...

•9 years ago

Rest in Peace

Our loved one died of PSP, a suffering death, blessedly released. He lived and loved and worked hard, and had many sweet memories of the future. We loved him...

Our loved one died of PSP, a suffering death, blessedly released. He lived and l...

•9 years ago

Change in Rose again!

After Monday, and Rose being very poorly pale and low blood pressure I went to visit her today, and here she was sitting up in the residents lounge watching...

After Monday, and Rose being very poorly pale and low blood pressure I went to v...

•9 years ago

chc funding - i have got it!!

i hAVE BEEN AWARDED THE CHC FUNDING BY THE PANEL WHICH MET ON MONDAY TO RECONSIDER MY CASE NOW CALLED "THE PERSONALBUDGET" OS I SHALLL HAVE OT FIND OUT WHEN I...

i hAVE BEEN AWARDED THE CHC FUNDING BY THE PANEL WHICH MET ON MONDAY TO RECONSID...

•9 years ago

Snowdrops Fading

The snowdrops are now all beginning to fade, they have lost their lustrous whiteness and ,dare I say it ,are taking on a delicate shade of grey . Gradually...

The snowdrops are now all beginning to fade, they have lost their lustrous white...

•9 years ago

Stubborn as a mule

Mum still in hospital , it has been over a week . Because she is so unsteady on her feet and keeps falling over they will not release her, she wants to go home...

Mum still in hospital , it has been over a week . Because she is so unsteady on ...

•9 years ago

Feeling useless

Sitting here in peace and quiet George still asleep dog snoring sun beginning to shine and feeling useless and bad George sleeps until late does not want to...

Sitting here in peace and quiet George still asleep dog snoring sun beginning to...

Yvonneandgeorge

•9 years ago

Uncontrollable body movements with hullucinations.

Recently my mum has started having some really strange episodes. While she is sitting down, she is unable to stand independently, she starts moving her legs...

Recently my mum has started having some really strange episodes. While she is si...

•9 years ago

Pain medication

Rose only getting paracetamol for pain, but we don't know if she has got pain as she can't communicate.Do PSP patients have much pain? Today she was making...

Rose only getting paracetamol for pain, but we don't know if she has got pain as...

•9 years ago

Change in Rose

I asked the nursing assistant if there was cause for concern about Rose but she said no just having a bad day? What would the signs be if she was near the end?

I asked the nursing assistant if there was cause for concern about Rose but she ...

•9 years ago

Another change in Rose

Hi followers and friends posted a few days ago about Rose having a good reaction from sinemet to madopar.we'll today, i went to visi5 and she looked terrible....

Hi followers and friends posted a few days ago about Rose having a good reaction...

•9 years ago

Be the first to reply

mailing from psp foundation

i got a mailing from the psp foundation. they have trials in Clalifornia. they are the nearest state to me MOST OF THE PSP PATIENTS ARE IN BOSTON ,...

i got a mailing from the psp foundation. they have trials in Clalifornia. they...

•9 years ago

It's been very quiet

Hi everyone it has been very quiet, is everyone ok? We are stidll waiting for nerlogical hospital to get in touch, I phoned them, and spoke to the person that...

Hi everyone it has been very quiet, is everyone ok? We are stidll waiting for ne...

Yvonneandgeorge

•9 years ago

I'M STILL WAITING FOR SOMEONE TO GET ME TO THE PEOPLE IN THE UNITED STATES THAT CAN HELP ME GET SOME FINANCHIAL AID.?

I NEED CONSTANT CARE AT HIOE. I NEED 24/7 CARE . MY DAUGHTER IS DOING THE BEST SHE CAN SHE GOT HER HAND CAUGHT IN THE DOORWAY @ MY DR'S OFFICE , PUSHING MY...

I NEED CONSTANT CARE AT HIOE. I NEED 24/7 CARE . MY DAUGHTER IS DOING THE BEST...

•9 years ago

Julie

Hi all. Never posted on anything like this before,,, lost my dad last October to Parkinson's, he had had this disease for 12 years, and was still like DAD ......

Hi all. Never posted on anything like this before,,, lost my dad last October to...

•9 years ago

We do it Just for Love

£15.74 an hour x 16 hours a day (plus night call outs!) =£1762.88 a week and we do it just for love. Thought you all would like to read the following. Care...

£15.74 an hour x 16 hours a day (plus night call outs!) =£1762.88 a week and we ...

•9 years ago

Be the first to reply

Changed to madopar

My sister Rose is in final stage PSP and is now at risk of choking and is on a pureed diet and the nursing staff have had to remove her false teeth. Also have...

My sister Rose is in final stage PSP and is now at risk of choking and is on a p...

•9 years ago

The CarerSmart Club.......FREE!

New discount club launched for carers People caring for their sick and disabled family members are set to benefit from a new club designed specifically for...

New discount club launched for carers People caring for their sick and disabled ...

•9 years ago

IS ANYONE INTERESTED MY PSP AWARENESS IDEA????????

I'M WILLING TO GET THE PLAN ROLLING BUT HAVE TO BE SURE IT'S OK,,,,,,,,,, TOO DO IT>>>>>>>>>>>

I'M WILLING TO GET THE PLAN ROLLING BUT HAVE TO BE SURE IT'S OK,,,,,,,,,...

•9 years ago

Feeling Weary

Do you ever get up in the morning after an exhausting night's sleep and feel as though all the energy has been drained out of you ? There was nothing...

Do you ever get up in the morning after an exhausting night's sleep and feel a...

•9 years ago

Comfort bed

My husband suffered from PSP and found difficulty getting in and out of bed. For this reason and to help him keep his independence we purchased a mobility bed...

My husband suffered from PSP and found difficulty getting in and out of bed. For...

•9 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(137)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May Jun Jul Aug

Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec