Normal pressure hydrocephalus, has anyone asked about the similarities to the symptoms of PSP ? I have asked every doctor we have seen and they all dismiss it but given how similar the symptoms are I would like someone to at least consider the possibility !
P is getting worse by the day, mobility, falls, cognition etc, etc yet although the medics say he is not typical (what is?) they still refuse to investigate for NPH. I know I may be clutching at straws but what option do we have ?
I feel that P has been 'pigeonholed' and that the medics are just fishing around for 'try it and see' palliative care.
Sinemet has not worked or Exelon for the memory, I wonder what else they will suggest ?
Sorry for the rant but P is becoming almost impossible to move around and requires 24/7 attention.