Hi all. Never posted on anything like this before,,, lost my dad last October to Parkinson's, he had had this disease for 12 years, and was still like DAD ... After his death I found out my mum had been diagnosed 2 years previous with psp... Everything clicked into place of how she was, how she howled one minute and was fine the next, how she slurred her speech ( we thought it was her new dentures) , how she was bad walking tho this we thought was due to a trapped nerve, but on surgery to alleviate this she got worse. Thinking back to her holidays 4 years previous , she had falls she could not explain even then. She has made bad decisions in purchases, and generally you cannot get much conversation from her.. She is not MUM anymore, as it stands now she is hospital after a bout of falls, and remains whether she is safe to return home. My small children get scared when they see nannie as they do not understand why she cries, it is very upsetting.
She is very stubborn and independent as we would alike to be, she tells me very little about her medication , which she is getting muddled taking. I talk to her Parkinson's nurse, her doctor but there is little I can do ... Thanks for reading