Research studies for PSP: My husband and I... - PSP Association

PSP Association

9,660 members11,570 posts

Research studies for PSP

mthteach profile image
8 Replies

My husband and I traveled to Birmingham, Al about a week ago. They are doing trial studies to help PSP patients. The family is in agreeance with me that we should not sit on the wayside with this disease. Has anyone on here heard of this study: Safety Study of TPI-287 to Treat CBS and PSP (TPI-287-4RT). I would like to know any information at all that you know. Thank you, Mathteach

Written by
mthteach profile image
mthteach
To view profiles and participate in discussions please or .
8 Replies

Hi Mathteach

There is quite a lot of information on this forum with respect to TPI-287. Just use the search window in the top right hand corner and type in TPI-287. You'll find all the past "posts" on this subject.

Hope this helps.

T.

sidharth_roy profile image
sidharth_roy

I would like to know about the same (Safety Study of TPI-287 to Treat CBS and PSP (TPI-287-4RT)).

My mother has been affected with Parkinson PSP and is very ill .

I am from India .

S Roychowdhury

+91 9883225454

Hi Mathteach

If taking part in research is something you are interested in please contact the PSP Helpline on 0300 0110 122 or email them helpline@pspassociation.org.uk and they will be able to talk you through registering your interest and what research is taking place at the moment.

mthteach profile image
mthteach in reply to

We are already signed up for the study in Birmingham, AL

jillannf6 profile image
jillannf6 in reply to

i ahould v mchh like to gtake part in any research which is on going at the moment but there seems to be v little in the

jillannf6 profile image
jillannf6 in reply tojillannf6

n w oF the uk. Am i tight or not?

lol jill

:-)

jimandsharynp profile image
jimandsharynp

There are many studies of PSP going on around the country. My wife participated in a study held at the University of Florida Movement Disorder Clinic for two years. Any study may hold the key to PSP so I encourage you to participate. Jimbo

jillannf6 profile image
jillannf6

but not in the Uk Jim??

am i right ro not ?

LOL JILL

:-)

Not what you're looking for?

You may also like...

Research

L had his last MRI and PET scan with the research doctor yesterday. They told us that he could...
mthteach profile image

PSP Research & Trials UK

We are thrilled to announce a major investment by the Medical Research Council in PSP Research....
am2015 profile image

There has to be stuff out there.....

Hello All, I am an advocate of my father who has PSP. I have been reading everything that I have...
mattgo profile image

Clinical Research Study for PSP

Hello All, Is anyone out there participating in a clinical research study to assess the efficacy of...
teresa1988 profile image

Zolpidem for PSP

Hi Does anyone have experience with Zolpidem for PSP? A user in a facebook PSP forum posted his...
sammy90210 profile image

Moderation team

HelenPSPA profile image
HelenPSPAAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.