PSP Association
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chc funding - i have got it!!

i hAVE BEEN AWARDED THE CHC FUNDING BY THE PANEL WHICH MET ON MONDAY TO RECONSIDER MY CASE NOW CALLED "THE PERSONALBUDGET" OS I SHALLL HAVE OT FIND OUT WHEN I GO TO THE HOSPICE ON FRIDAY HOW IT WILL BENEFIT ME=-THEY HAVE BEEN MARVELLOUS AT GETTING IT SORTED OUT FOR ME AND ALL CREDIT TO THE GREAT OUTREACH TEAM AND DAY THERAPY TEAMS WHICH THEY HAVE THERE!

Many thanks to you all for your interest and concern and it DOES mean that PSP will qualify one for extra hours if put fwd in the right way to the pane;l i have got a lot worse in terms of many of the qualifying points which givE one the award but i was fighting a losing battle with myself over it

A glass or two of wine tonight i think is called for to celebrate so plz raise your glass with me if you are having a glass of wine tonight (RED for me!)

LOL JILL

:-)

32 Replies
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Really pleased for you Jill. White, with a bit a red with the cheese, got me though tonight!!!

Lots of love

Heady

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i am really pleased for you jill although not sure what the chc funding is mate but you are obviously pleased about it then so am I good luck mate peter jones queensland australia psp sufferer

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I am really pleased for you too Jill. Well done, not an easy battle to win ! Lots of love to you. Anne x

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Enjoy your tipple and well done for getting through the process of getting your funding.

Katie

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thanks to you all for responding to my post!

lol jill

:-)

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So so pleased for you Jill, you are always so positive, may life be more gentle for you

Flicka xxxx

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Big, big congratulations to you. So happy to hear, I missed last nights toast so will have one for you tonight, cheers Jill xx

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So glad for u Jill hope it works well for u Marytea13 in Western Australia

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Hi Jill congratulations you deserve it you are an aspiration to PSP sufferers xxxxxx

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Jill it should of said inspiration

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That's wonderful news, Jill. So much less to worry about now.

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i'll just have a fosters mate thanks thats XXXX mate it puts new life into yer body ,after a couple of well 3or 4 or even 5 then you don't know you have got a body matey peter jones queensland Australia psp sufferer

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and I don't drink mate im not a pub man just thought i would let you know only water peter jones queensland Australia psp sufferer

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WONDERFUL! I am so pleased for you. You absolutely SHOULD get CHC, . I am so glad the system worked for you the way it should. Enjoy your wine. You very much deserve it.

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Well done Jill. Will be raising a glass of red for you tonight.

take care, Maddy

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Jill,whatever this funding is you deserve it if only for your great courage,love Rollie

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well done so pleased for you will raise a glass of red when i am not on Tramadol!

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I'm so very pleased for you Jill, I've admired your spirit for quite a while and anyone with PSP doesn't need the additional worry of how to afford/access the help you need. Well done to you and the hospice. Kind regards, Jerry.

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thanks for all yourkind replies i appreciate it v much

lol jill

and a big :-)

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Jill, I'm so excited and pleased for you. Wonderful news and such a deserving person as well. Congratulations!!

Jimbo

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My mother-in law has just been informed that she has been successful in obtaining CHC funding. As a health care professional I found the whole 5 hour assessment a gruelling and emotional process. Subsequently I fully understand your happiness and I will certainly be toasting you tonight with a glass of red :)

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good news!jANEYMAC

I M PLEASED FOR YOU AND YR

MIL

\LOL JILL:-)

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hi Janeymac . I just picked up this thread on CHC ,

we have been having carers for two years night and morning . I do everything else for my husband . I am 78 . I hoist do the lot . 24 hrs .

aftet a very long wait have had a visit from a social worker who arranged for District nurse to come and assess John.

I had already made some notes on how things were for us both . I write it down because when I start to explain I feel as if I am making things up . I am not .

the nurse visited yesterday unexpectedly which was good . o had been worried that I would say the wrong thing , I didn't have a chance to get het up about them coming.

luckily John was having one of his bad days . normally when someone like that comes it's when he is having one of his better days ,

john is so unpredictable and changes at the drop of a hat . From wide awake to not being able to even open his mouth .

She was brilliant . Her father in law had had the same illness and had been very like how John is .

she told me she was going to try for CHC for us ,, she wants to look after both of us .

I am not holding my breath because like she said it's not down to her but to the panel . I will meet that oath when it comes .

she has The Patkinsons nurse e mail and GP and I know they will support us .

You say it's not an easy process , can u tell me who els will be on the team to agree .

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Good going, Jill.

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Good for yu I'll drink to that good luck / everything 000xxxxx

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ok jill good luck to you matey and have as drop for me as well yesterday I started on madopa I though I would give it a try I ask the dr first and he agreed it was worth a try so there you are mate see yer reg peter jones queensland Australia psp take care mate

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HAVE YOU TRIED AMANTADINE PETER ?

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hi jill well I asked to go on madopar I have been taking it for two days now I feel a bit dodgy on my pins and have fallen once already I was expecting great things but perhaps its to early in the day I should maybe be on them for a week or so if I am going to see any benefits mate at the moment we are down the coast in an apartment right on the beach front and the sound of the waves are sending me to sleep

well matey I will say goodnight to you or g;day

whatever mate see yer take care peter jones queensland Australia psp sufferer

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thanks for keeping in touch peter jones

i appreciate it you ware certainly getting away from it all arent you ??

i have not been anywhere this winter at all iwht ian but now that the spring is here i should like to get away but we cannot agree any dates at all - i hav e my choir rehearsals on wednesdays (WHICH I CANNOT MISS) and he has his mAN U MATCHE S WHICH HE CANNOT MISS ) SO WE HAVE A BlocK BETWEEN US

im thinking of some respite care for myself at the end of this month in Southport which is only 20 miles away but it would give us a break fm each touter which is wh

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WHAY WE BOTH NEED AT THE MOMENT

THE PSP IS GETTING HIM DOWN BU T I HOPE HTE MADOPAR HELPS YOU PETER WITH YOUR BALANCE PROBS

IM USIGN A WHEELCHAIR INSIDE,AND OUTSIDE NWO TO REDUCE THE NO. FO FALLS NAD IT CERTAINLY HAS DONE SO

SO GOOOD NIGHT OT YOU TOO PETER JONES

AND

LOL JILL

:-)

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WELL DONE DEAR JILL - AND LET US HOPE THAT YOU NEED IT FOR A VERY LONG TIME TOO # LOVE FROM SHARON XXX

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thanks sharon 4 that

i too hope i need it fr a long time too1

Lol jill

:-)

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