It is so difficult to know because of the communication difficulties. I have read about frontotemporal lobe dementia being part of PSP. When I read the symptoms, it sounds like my mum may have this but it could also just be that she has changed because of the the upset and difficulty of dealing with her illness. I just don't know. In an way, it would be easier to accept that she can't help the changes. These are the changes we have noticed: Loss of empathy; loss of inhibitions ie takes her top off regardless of who is in the room; aggression, strikes out at us and screams (despite not being able to talk to us!); no regard for personal hygiene; has a strict routine that she likes and if we get it wrong, she gets mad; constantly fiddles with tissues and wet wipes and drops them on the floor. However her memory is fantastic and every now and then we get flashes of how she used to be. How much of the real her is still there?? Is this an impossible question to answer??
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