Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for September 2011

eye tremor

hi all, just a short blog for a change just lately i have had this slight tremor in my left eye, it wasnt causeing me any problems at first but over the...

hi all, just a short blog for a change just lately i have had this slight trem...

ray-wiffen-1958

•13 years ago

Zumbathon party in support of PSPA - 22nd September - Rochdale

Hi everyone I wrote a while ago as I had released a song and I am doing a number of charity events up to January next year in aid of the PSP Association....

Hi everyone I wrote a while ago as I had released a song and I am doing a num...

•13 years ago

GOOD DAYS AND BAD DAYS

I had a bad day yesterday but was v lucky Fell for the 1st time backwards , down 4 stairs and landed on my head on the stone floor at the bottom in A & E...

I had a bad day yesterday but was v lucky Fell for the 1st time backwards , d...

•13 years ago

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I saw a very good booklet on line the other day but can't find it again. It was brief but very helpful and

had lots of good suggestions for psp patients and carers . Can you help me find it again? Lucille

had lots of good suggestions for psp patients and carers . Can you help me find...

•13 years ago

Horrendous night!!!!!!!!!!!!

What a night we had !!!! Frank hasn't been walking well the last few days & seems to want to sleep more so when he asked to lie on the settee last night I...

What a night we had !!!! Frank hasn't been walking well the last few days & seem...

•13 years ago

My Hubby's Day Care Progress

Today is the second week that Tony has attended his Day Care and he loved it! He came back very tired as he had been playing cards. I was amazed that he was...

Today is the second week that Tony has attended his Day Care and he loved it! He...

•13 years ago

My journey through PSP

Hi guys, In 2006 I began to feel very, very tired. I went to see a number of doctors to find out why I was feeling this way. Beginning in 2007 I was...

Hi guys, In 2006 I began to feel very, very tired. I went to see a number of...

•13 years ago

PSP and the real world: possibillity of doing ordinary things

i am not in denial of the Psp at alll and have been very acccepting of it knowing it will finish me off at some time in the not too distant future My life...

i am not in denial of the Psp at alll and have been very acccepting of it knowin...

•13 years ago

Respite care.

Following some gentle persuasion from Eddie's community care worker I have booked him in for his first two days of respite care in a couple of weeks and then...

Following some gentle persuasion from Eddie's community care worker I have booke...

•13 years ago

stoicism and psp

i have become stoical and accepting fo the psp and whatever it throws at me plus life in general i am attempting to sell my l1st floor flat to move into a...

i have become stoical and accepting fo the psp and whatever it throws at me plu...

•13 years ago

Reading PSP blogs

hi all, Have spent the last 3 hours reading all the blogs posted - I am amazed! For the last 7 years I have felt to be One of only a few people in the...

hi all, Have spent the last 3 hours reading all the blogs posted - I am amaze...

•13 years ago

holidays can b e ok but... home is better

hi all i had 3 days of my 10- day holiday towards end of august then had to come bakc home as i had a bladder infection ----clleared up now with antibiotics...

hi all i had 3 days of my 10- day holiday towards end of august then had to com...

•13 years ago

CAMERA DOWN THE THROAT

Hi all, Can any body give me any info on haveing a camera stuck down your throat, i have been told by my gp that i will have to go in to hospital in the...

Hi all, Can any body give me any info on haveing a camera stuck down your th...

ray-wiffen-1958

•13 years ago

Searching for PSP patients using DAVUNETIDE

I am a PSP patient who is in an experimental study at UCSF testing the drug Davunetide. I am looking for other patients who are currently in this study.After...

I am a PSP patient who is in an experimental study at UCSF testing the drug Davu...

•13 years ago

Good days a step too far ?

Mum has been great lately so good infact that it was my nephews 21st Birthday and we managed to get Mum to the party for a few hours. Mum is nill by mouth now...

Mum has been great lately so good infact that it was my nephews 21st Birthday an...

•13 years ago

Help inform us on the services you need

We are running an online survey to help us understand where the difficulties are for you in getting the support and services you need. By taking part in this...

We are running an online survey to help us understand where the difficulties are...

•13 years ago

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