Hi im new here and wondered if anyone suffered facial droop one side. mine was right side face and mouth along with muscle weakness, worst on right side but both sides. Following this was lots of inflammation and skin issues fatigue awful brain fog. facial swelling and face lesion which grew would scale and go and return with flares along with raised white areas . very blue sclera flares with brown marks.chest pain swelling red v white marks, breathlessness mainly on exertion and muscle problems on exertion. Sinus problems helped by wash, heart rate problems, gastro problems joints and muscles and signs of anetoderma on skin especially stinging nettle look and indents that look like pitting oedema but appear on their own. Cannot splay fingers or move toes after using.
been a long journey, was initially given hydroxychloroquine following knee and hand problems then after few months they were stopped and wham I came down with a multitude of wide ranging systemic symptoms . covid and neglect left progression until a trial of high dose steroids last year which helped inflammation and skin and markedly disturbing head fog problems.Still eye ptosis but mouth only slightly drooped, smooth forehead side of ptosis wrinkled forehead the other side.
steroids helped as did hydroxy but by no means cured. Elbows still dry lumpy blistery and bruise easy and long lasting.
Latest diagnosis fibro and ununifying symptoms but history of skin muscle weakness and all not included in history.
It has come to light that I was initially given hydroxy to see if helped with symptoms of then which it did (as did steroids at height of bad health) as suspected mctd lupus aps. As they helped and told to discontinue with progression I wonder if anyone can shed any light.
sorry thats a lot but its been almost 7 years with no help