Ryeqo medication : Is anyone on Ryeqo... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Ryeqo medication

alicat_au profile image
4 Replies

Is anyone on Ryeqo? I have fibroids and endo and someone suggested this, but reading the product info I'm not too sure.

I have APS and have previously suffered from TIAs. I had a clot in the heart but it dissolved. Thank you.

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alicat_au profile image
alicat_au
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4 Replies
HollyHeski profile image
HollyHeskiAdministrator

Hi, this is really a drug that you need to discuss the pros and cons with your specialist team.I had not heard of this drug but have looked up the contraindications and have copied here for you.

"Contraindications include pregnancy and breastfeeding, a history of venous or arterial thromboembolic disorders, thrombophilic disorders, osteoporosis, migraine with aura, hormone-sensitive malignancies, genital bleeding of unknown aetiology, severe hepatic disease and a history of liver tumour"

Hopefully others will come forward with real experiences to give you more openess on the drug.

MaryF profile image
MaryFAdministrator in reply to HollyHeski

Great info here @HollyHeski, not one I have heard of and I agree a conversation to be had with main Hughes Syndrome/APS consultant MaryF

soul22 profile image
soul22

Hi nice to meet you ☺️ I've in not heard of that drug il look it up,I had fibroids and endometriosis diagnosed post ovarian Endo cancer surgery by biopsy.

Wish you well

soul22 profile image
soul22

Hi nice to meet you ☺️

I googled found reliable link regarding medicine you mentioned

It's for fibroids and endometriosis it contains both hormones but described as way shrinking fibroids over time by up to 17 % reduced bleeds

But has side effects I copy added a link from nice who decide drugs approved nhs.

It's being used to avoid surgery states don't ovulate fully on it.

So if trying baby id query it new nhs approved

There link for you all info need

bnf.nice.org.uk/drugs/relug...

I had a keyhole myomectomy for fibroids initially,but got more in areas where keyhole wasn't permissable.

Take care

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