Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for May 2020

covid testing for Hughes patients

Any data of covid testing on diagnosed APS patients? Are some tests registering false positives? Are some covid tests more accurate for us thsn others?

Any data of covid testing on diagnosed APS patients? Are some tests registering...

•4 years ago

Sticky Blood & Blood Pressure

Hi I have been trying to get treatment for the past couple of years for my ‘sticky blood’ but because I have had a hysterectomy and no strokes apparently I...

Hi I have been trying to get treatment for the past couple of years for my ‘stic...

•4 years ago

Rescue Remedy

My INR is up to 5.1 today which is very unusual for me as it's tended to stay in range (3-4) the last few months. The only thing that I have taken that is...

My INR is up to 5.1 today which is very unusual for me as it's tended to stay in...

•4 years ago

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COVID storms and APS flares.

Is it possible that we who have APS are witnessing the dawning of awareness that our "flares" are similar to COVID cytochrome storms? Will we see Dr. Hughes'...

Is it possible that we who have APS are witnessing the dawning of awareness that...

•4 years ago

24 Years Later!

February 29, 1996! I was 39yrs old! Fitness was my passion and I had my 1st stroke that day! No sign of clots at that time! The Clots "showed up" after my...

February 29, 1996! I was 39yrs old! Fitness was my passion and I had my 1st str...

•4 years ago

Covid 19 & Presence of Lupus anti-coagulant?

Please could someone explain the info, re Presence of a lupus-anticoagulant may explain prolonged activated partial thrpmboplastin time in Covid 19. Does this...

Please could someone explain the info, re Presence of a lupus-anticoagulant may ...

•4 years ago

Blood too thick, blood too thin, what a mess I’m in!!!!!

I do not have a diagnosis of Hughes Syndrome - APS!!!! However, I have been on Warfarin since 1993 (for 12 months) and went on it for life in 1996 after...

I do not have a diagnosis of Hughes Syndrome - APS!!!! However, I have been ...

•4 years ago

Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19

MAY 6, 2020 Presence of a lupus anticoagulant may explain prolonged activated partial-thromboplastin time in COVID-19 By Denise Baez NEW YORK -- May 6, 2020...

MAY 6, 2020 Presence of a lupus anticoagulant may explain prolonged activated pa...

Administrator•4 years ago

Pins and needles

Hi all. I have multiple autoimmune conditions - coeliac, Hashimotos, UCTD and APS. The APS has been classified as obstetric APS and, as such, I was discharged...

Hi all. I have multiple autoimmune conditions - coeliac, Hashimotos, UCTD and AP...

•4 years ago

Connective Tissue Disease

When I was first diagnosed in 2007, I was told I had mixed connective tissue disease, APS, Sjogrens like symptoms. I have never had any further tests for CTD...

When I was first diagnosed in 2007, I was told I had mixed connective tissue dis...

•4 years ago

Could this be APS

Hi I’m asking for my 40 year old husband. Since September he has been quite unwell. We returned from holiday and about 3 days later he developed a red raised...

Hi I’m asking for my 40 year old husband. Since September he has been quite unwe...

•4 years ago

Doctor Mike Hansen YouTube of may 6th autopsy findings

I saw his previous video had been posted so I thought I would point out this latest you tube. Sorry I do not know how to link on my iPad. He discusses the...

I saw his previous video had been posted so I thought I would point out this lat...

•4 years ago

Low vitamin D and Corona Virus

Hi, a few papers here to read, if you feel your D could be low, do talk to your GP and or main consultant by phone or video, to get their advise on increasing...

Hi, a few papers here to read, if you feel your D could be low, do talk to your ...

Administrator•4 years ago

Lupas or Aps

Hey everybody. I was diagnosed with primary Aps but when I look up Lupas and Aps. I have most of the sign of Lupas and Aps Is there a chart that has the...

Hey everybody. I was diagnosed with primary Aps but when I look up Lupas and Ap...

•4 years ago

Skin issues

Hi all , I've recently been diagnosed with APS but without the lupus antibody ! Now since I first saw my Rheumatologist in Feb all sorts of things are going on...

Hi all , I've recently been diagnosed with APS but without the lupus antibody ! ...

•4 years ago

Hrt obstetric aps

Hi I would like some info on hrt and Aps. In 2015 I lost a baby at 5mths pregant (after 3 sussesful pregnancies) I was advised by my local nhs hospital it...

Hi I would like some info on hrt and Aps. In 2015 I lost a baby at 5mths pregant...

•4 years ago

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