Pins and needles

[Wooziesoozie]

Hi all. I have multiple autoimmune conditions - coeliac, Hashimotos, UCTD and APS. The APS has been classified as obstetric APS and, as such, I was discharged from the lupus clinic in London and am not on any meds for the APS.

Periodically, I get bouts of pins and needles. My B12 levels aren’t really good (as in top of normal range good). It’s getting worse at the moment. They wake me up at night very often and now I’m getting them a lot during the day when I crochet or hold my iPad up when I’m lying in bed reading on it.

It’s got to the point where I need to speak to the GP about it. Could it be an APS symptom? Anything else anyone thinks I should run past the GP? I appreciate there are many possible reasons for pins and needles - I’d just like guidance as to what to run past the GP. Many thanks!

[HollyHeski Administrator]

B12 is a classic for pins and needles, I would get that checked first as you have had previous issues.

[MaryF Administrator]

I have to say, often GP's will say your levels are fine, even when they are border line, and I am not totally sure, from personal experience, that I agree with the levels being set so low in the first place, another clue if what your Folate levels are doing! Low Folate can be part of a Pernicious Anaemia diagnosis. There is a great forum on here, Pernicious Anaemia Society and I have personally read Martyn Hooper's book, and heard him talk. Many of us order our own tests to check D, B12, Ferritin Folate and to have a more accurate view of our Thyroids. Coeliac and low B12 very much goes together! Also if you originally had a diagnosis for Hughes Syndrome/APS, can they not, as in your GP practice, consider a tiny dose of Aspirin per day? MaryF