Posts - Hughes Syndrome APS Forum | HealthUnlocked

Hughes Syndrome APS Forum

10,356 members • 10,544 posts

All posts for February 2019

Aps & Seizures

Was diagnosed with APS in 2012 and put on warfarin (INR 3.0 to 4.0) under a self testing regime / coupled with with three monthly venous validation test at the...

Was diagnosed with APS in 2012 and put on warfarin (INR 3.0 to 4.0) under a self...

•5 years ago

Flaring again....

Unfortunately I’m paying the price for taking advantage of feeling so good the last 6 months. This will now be my 2nd official flare with APS . Once again I...

Unfortunately I’m paying the price for taking advantage of feeling so good the l...

•5 years ago

Little life hack-to everyone just a little way to lighten ur load

When u are feeling down and feel like u can’t take it anymore! Dance just buy urself Even if u no longer have the coordination. Music u like and little...

When u are feeling down and feel like u can’t take it anymore! Dance just buy ur...

•5 years ago

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Warfarin first few days side effects

I am experiencing a few side effects and wanted to see if y’all had any of them. Is it my body just adjusting to the warfarin and will it go away? 1.......

I am experiencing a few side effects and wanted to see if y’all had any of them....

•5 years ago

Work

Do you all have full time work? How do you cope in a normal day? Im soooo sick of being sick! Im have a lovely job and a child... but when i get sick, im...

Do you all have full time work? How do you cope in a normal day? Im soooo sic...

•5 years ago

APS and coeliac disease

Is there any correlation between APS and coeliac disease? I have some symptoms that seem to be coeliac related (according to the UK website). It says that this...

Is there any correlation between APS and coeliac disease? I have some symptoms t...

•5 years ago

Transitioning from Dalteparin to Rivaroxaban

My Hematology team have decided to take me off Dalteparin 15,000 IU/0.6 ml to Rivaroxaban 15 mg, this is because a recent DEXA scan has shown I have severe...

My Hematology team have decided to take me off Dalteparin 15,000 IU/0.6 ml to Ri...

•5 years ago

On clexane because of madly unstable INR

Hi all I had my aortic valve replaced and my aortic arch repaired due to aneurysm, in December 2016. Did loads of research and decided, as I was only 55, to...

Hi all I had my aortic valve replaced and my aortic arch repaired due to aneurys...

•5 years ago

Tattoo

Hello to all. My question is. It's now more than two since I'm taking Coumadin and my INR rage is around 1.7 can i have a tattoo done?

Hello to all. My question is. It's now more than two since I'm taking Coumadin a...

•5 years ago

Low positive b2gp1?! Can someone translate please?

Hi, I'm new here, I mainly lurk in the lupus group 😂 Found today, accidentally, that I have tested 'low positive' b2gp1 twice and three months apart. The Dr...

Hi, I'm new here, I mainly lurk in the lupus group 😂 Found today, accidentally...

•5 years ago

Professor Graham Hughes's Blog - February 2019

https://ghic.world/self-help/blog/february-2019 Mary F

https://ghic.world/self-help/blog/february-2019 Mary F

Administrator•5 years ago

RESULTS OF MRI AND PITUITARY GLAND

Hi I wrote a few weeks ago re MRI scan as an asymmetry pituitary gland showed up. Just had hospital on phone with results of the brain scan regarding the...

Hi I wrote a few weeks ago re MRI scan as an asymmetry pituitary gland showed up...

•5 years ago

Blood pressure problems

At the last gp visit, which I booked myself as had been feeling very unwell, the latest discovery is problem with blood pressure. I was sat down, blood...

At the last gp visit, which I booked myself as had been feeling very unwell, the...

•5 years ago

How much for Coumadin Clinic

Hi, can those in the US, or elsewhere tell me how much they have to pay for a coumadin clinic visit. My clinic has been mis-coding lately and they are...

Hi, can those in the US, or elsewhere tell me how much they have to pay for a co...

•5 years ago

New here

Hi, I haven't been officially diagnosed and am waiting for the Rheumatologist to review my file and results. I am unsure if this is the right group but I...

Hi, I haven't been officially diagnosed and am waiting for the Rheumatologist to...

•5 years ago

Plavix and enlarged spleen

Has anyone heard of Plavix causing an enlarged spleen?

Has anyone heard of Plavix causing an enlarged spleen?

•5 years ago

New to Warfarin

Good morning! It has been a while. I was informed yesterday that my antibodies had become worse and he wanted to switch me from Eliquis to Warfarin. I always...

Good morning! It has been a while. I was informed yesterday that my antibodies h...

•5 years ago

Oat Beta-Glucans with APS

Hi all, My cholesterol level is slightly raised and I’m keen to see if I can reduce it without the need for statins through a few key healthy diet...

Hi all, My cholesterol level is slightly raised and I’m keen to see if I can red...

•5 years ago

No Treatment?!

Hi, I’m new here as I wasn’t sure this was the right group but I’m looking for some suggestions on what I can do. I’ve been having a lot of hospital tests to...

Hi, I’m new here as I wasn’t sure this was the right group but I’m looking for s...

•5 years ago

No treatment for APS

Hi everyone this is my first question but this site has already helped me a lot. I had undiagnosed issues for about 6 years until I took it into my own hands...

Hi everyone this is my first question but this site has already helped me a lot....

•5 years ago

First rheumatologist apt next week

I have my first rheumatologist appointment next week, referred my my haematologist for a second opinion due to complex medical issues over the last two to five...

I have my first rheumatologist appointment next week, referred my my haematologi...

•5 years ago

Boils and Abscesses

Hi I Suffer From APS Hughes Syndrome, approximately last 1-2 years I’ve been having Awful Boils and Abscesses mainly on Buttocks and Back , All range from Big...

Hi I Suffer From APS Hughes Syndrome, approximately last 1-2 years I’ve been hav...

•5 years ago

Small Stroke following routine Bowel Procedure

Hi guys, long time no speak I hope my post finds you all doing well? I was diagnosed with APS (triple positive) in September 2016 after a series of TIAs and...

Hi guys, long time no speak I hope my post finds you all doing well? I was diagn...

•5 years ago

Probotics

With APS can you take Probotics???? If so, what strength & type. I ordered the Immune Support & someone told me if I had an Immune Disease they were NOT safe?...

With APS can you take Probotics???? If so, what strength & type. I ordered the I...

GirlfromTennessee

•5 years ago

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