Do you all have full time work?
How do you cope in a normal day?
Im soooo sick of being sick!
Im have a lovely job and a child... but when i get sick, im not able to mind anything...
that’s why i want to hear how your day/life is?
Do you all have full time work?
How do you cope in a normal day?
Im soooo sick of being sick!
Im have a lovely job and a child... but when i get sick, im not able to mind anything...
that’s why i want to hear how your day/life is?
I work from home. When I have bad days a rest a few minutes. Do you have a job/boss that may let you take a break? Being sick is no fun but your not alone!😊
I work from home, which fits around things I have to do to keep well, I also spent many years teaching my children when they were too ill for school. However that phase has finished now, as they are all at University now. I am about to take on part time job outside of the house, but again, this will fit around the things I am already doing. MaryF
Oh boy I know exactly what you mean, not only sick of being sick, sick of answering how are you? -'I'm fine, just tired'
When my children were small I was undiagnosed and just plodded on, thinking this was it! I felt so guilty my children didn't seem to have an energetic Mum full of fun.
I worked full time as well until my first stroke, then part time since. Mostly from home until much later when they left home for travel & university, I then joined the ambulance service. That was hard doing 12 hr shifts, I just tried to pace myself.
I have a tendency to work, work, over doing it and then crash!! Its only later in life that I am learning to balance things out.
Don't be hard on yourself, each day is a new one, even if for just 10 minutes, try to give yourself 'you' quality time too. xx
I work I find it hard but I do have understanding in the workplace
I was taking a break between contracts to do my share of the child care when stroke/APS happened.
Haven't worked since, one reason is all the hospital/INR appointments. Where I am they only run clinics in office hours on particular days of the week and you need to book well in advance (staff admit the service is setup for retired patients). I would have to have a very understanding employer/client who can cope with me taking half a day off every two weeks (and coming back home) for an appointment (or having enough notice of where I am travelling to to arrange testing there). I had hoped self-testing would solve that one, and hence pay for itself in first job interview, but recent test-strip problems show how fragile self-testing is and how it can be withdrawn at no-notice for months.
Honestly I can't see how I could do what I used to do, I would need to retrain to something else, somehow.
So several years on, I am still at home being a house-husband (and if you ask my wife, a not very good one at that). I do better some days than others, I prioritise - if I can't do the cleaning, it'll still be dirty tomorrow, cooking, we can get takeaway, washing, that's more important. Everything takes, frustratingly, much longer than it used to. I do some DIY but very slowly and carefully, blades and power tools are somehow a lot scarier when on warfarin.
Thank you Ray46 for sharing 😃
I know the feeling about cleaning and cooking sometimes...
i like the freedom with having work and deside myself. I hope i can carry on with this with less hours 🙏
Dont let the tools keep you back for diy-ing... i work with scalpels and dont have many accidents. Just remember if you cut yourself, coffe from your normal bag will stop any bleding 😉🙈 best of luck