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murphylotte profile image
12 Replies

Do you all have full time work?

How do you cope in a normal day?

Im soooo sick of being sick!

Im have a lovely job and a child... but when i get sick, im not able to mind anything...

that’s why i want to hear how your day/life is?

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murphylotte profile image
murphylotte
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12 Replies
Ylmom profile image
Ylmom

I work from home. When I have bad days a rest a few minutes. Do you have a job/boss that may let you take a break? Being sick is no fun but your not alone!😊

murphylotte profile image
murphylotte in reply toYlmom

Im my own boss and can take all the breaks i want, but i find it hard anyway.

I had many bad infecion’s in my body lately... i just find myself getting frustrated at the minute on not getting better.

Ylmom profile image
Ylmom in reply tomurphylotte

Not feeling well is very frustrating. Hope you have good days soon!

murphylotte profile image
murphylotte in reply toYlmom

Thank you 🙏

MaryF profile image
MaryFAdministrator

I work from home, which fits around things I have to do to keep well, I also spent many years teaching my children when they were too ill for school. However that phase has finished now, as they are all at University now. I am about to take on part time job outside of the house, but again, this will fit around the things I am already doing. MaryF

murphylotte profile image
murphylotte in reply toMaryF

Hi MaryF

Thank you for taking time to answer.

I been thinking that i might have to change my was a bit 🤔

HollyHeski profile image
HollyHeskiAdministrator

Oh boy I know exactly what you mean, not only sick of being sick, sick of answering how are you? -'I'm fine, just tired'

When my children were small I was undiagnosed and just plodded on, thinking this was it! I felt so guilty my children didn't seem to have an energetic Mum full of fun.

I worked full time as well until my first stroke, then part time since. Mostly from home until much later when they left home for travel & university, I then joined the ambulance service. That was hard doing 12 hr shifts, I just tried to pace myself.

I have a tendency to work, work, over doing it and then crash!! Its only later in life that I am learning to balance things out.

Don't be hard on yourself, each day is a new one, even if for just 10 minutes, try to give yourself 'you' quality time too. xx

murphylotte profile image
murphylotte in reply toHollyHeski

Yes HollyHeski

My thoughts at the minute is, my girl hate my job and hate mum is tired!

I hate it to now and must try and balance things out i think. Thank you for taking time xx

TJSTICKYBLOOD profile image
TJSTICKYBLOOD

I work I find it hard but I do have understanding in the workplace

murphylotte profile image
murphylotte in reply toTJSTICKYBLOOD

I might not have understanding from my clients, but not all people are close to me.

I find work hard when my health is making funny stuff....

I must make changes i think, Thank you for sharing!

Ray46 profile image
Ray46

I was taking a break between contracts to do my share of the child care when stroke/APS happened.

Haven't worked since, one reason is all the hospital/INR appointments. Where I am they only run clinics in office hours on particular days of the week and you need to book well in advance (staff admit the service is setup for retired patients). I would have to have a very understanding employer/client who can cope with me taking half a day off every two weeks (and coming back home) for an appointment (or having enough notice of where I am travelling to to arrange testing there). I had hoped self-testing would solve that one, and hence pay for itself in first job interview, but recent test-strip problems show how fragile self-testing is and how it can be withdrawn at no-notice for months.

Honestly I can't see how I could do what I used to do, I would need to retrain to something else, somehow.

So several years on, I am still at home being a house-husband (and if you ask my wife, a not very good one at that). I do better some days than others, I prioritise - if I can't do the cleaning, it'll still be dirty tomorrow, cooking, we can get takeaway, washing, that's more important. Everything takes, frustratingly, much longer than it used to. I do some DIY but very slowly and carefully, blades and power tools are somehow a lot scarier when on warfarin.

murphylotte profile image
murphylotte in reply toRay46

Thank you Ray46 for sharing 😃

I know the feeling about cleaning and cooking sometimes...

i like the freedom with having work and deside myself. I hope i can carry on with this with less hours 🙏

Dont let the tools keep you back for diy-ing... i work with scalpels and dont have many accidents. Just remember if you cut yourself, coffe from your normal bag will stop any bleding 😉🙈 best of luck

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