Work

[murphylotte]

Do you all have full time work?

How do you cope in a normal day?

Im soooo sick of being sick!

Im have a lovely job and a child... but when i get sick, im not able to mind anything...

that’s why i want to hear how your day/life is?

[Ylmom]

I work from home. When I have bad days a rest a few minutes. Do you have a job/boss that may let you take a break? Being sick is no fun but your not alone!😊

[murphylotte in reply to Ylmom]

Im my own boss and can take all the breaks i want, but i find it hard anyway.

I had many bad infecion’s in my body lately... i just find myself getting frustrated at the minute on not getting better.

[Ylmom in reply to murphylotte]

Not feeling well is very frustrating. Hope you have good days soon!

[murphylotte in reply to Ylmom]

Thank you 🙏

[MaryF Administrator]

I work from home, which fits around things I have to do to keep well, I also spent many years teaching my children when they were too ill for school. However that phase has finished now, as they are all at University now. I am about to take on part time job outside of the house, but again, this will fit around the things I am already doing. MaryF

[murphylotte in reply to MaryF]

Hi MaryF

Thank you for taking time to answer.

I been thinking that i might have to change my was a bit 🤔

[HollyHeski Administrator]

Oh boy I know exactly what you mean, not only sick of being sick, sick of answering how are you? -'I'm fine, just tired'

When my children were small I was undiagnosed and just plodded on, thinking this was it! I felt so guilty my children didn't seem to have an energetic Mum full of fun.

I worked full time as well until my first stroke, then part time since. Mostly from home until much later when they left home for travel & university, I then joined the ambulance service. That was hard doing 12 hr shifts, I just tried to pace myself.

I have a tendency to work, work, over doing it and then crash!! Its only later in life that I am learning to balance things out.

Don't be hard on yourself, each day is a new one, even if for just 10 minutes, try to give yourself 'you' quality time too. xx

[murphylotte in reply to HollyHeski]

Yes HollyHeski

My thoughts at the minute is, my girl hate my job and hate mum is tired!

I hate it to now and must try and balance things out i think. Thank you for taking time xx

[TJSTICKYBLOOD]

I work I find it hard but I do have understanding in the workplace

[murphylotte in reply to TJSTICKYBLOOD]

I might not have understanding from my clients, but not all people are close to me.

I find work hard when my health is making funny stuff....

I must make changes i think, Thank you for sharing!

[Ray46]

I was taking a break between contracts to do my share of the child care when stroke/APS happened.

Haven't worked since, one reason is all the hospital/INR appointments. Where I am they only run clinics in office hours on particular days of the week and you need to book well in advance (staff admit the service is setup for retired patients). I would have to have a very understanding employer/client who can cope with me taking half a day off every two weeks (and coming back home) for an appointment (or having enough notice of where I am travelling to to arrange testing there). I had hoped self-testing would solve that one, and hence pay for itself in first job interview, but recent test-strip problems show how fragile self-testing is and how it can be withdrawn at no-notice for months.

Honestly I can't see how I could do what I used to do, I would need to retrain to something else, somehow.

So several years on, I am still at home being a house-husband (and if you ask my wife, a not very good one at that). I do better some days than others, I prioritise - if I can't do the cleaning, it'll still be dirty tomorrow, cooking, we can get takeaway, washing, that's more important. Everything takes, frustratingly, much longer than it used to. I do some DIY but very slowly and carefully, blades and power tools are somehow a lot scarier when on warfarin.

[murphylotte in reply to Ray46]

Thank you Ray46 for sharing 😃

I know the feeling about cleaning and cooking sometimes...

i like the freedom with having work and deside myself. I hope i can carry on with this with less hours 🙏

Dont let the tools keep you back for diy-ing... i work with scalpels and dont have many accidents. Just remember if you cut yourself, coffe from your normal bag will stop any bleding 😉🙈 best of luck