APS specialist recommendation for Lon... - Hughes Syndrome A...

Hughes Syndrome APS Forum

10,392 members10,588 posts

APS specialist recommendation for London Bridge Hospital

AvsG profile image
AvsG
18 Replies

Hi, can anyone recommend which Doctor at London Bridge Hospital would be good for helping to get a diagnosis of APS/ Hughes Syndrome? This is for another person that has contacted me for help. She needs to see a specialist that will do the necessary blood tests and listen carefully to her symptoms and look at her history of clotting episodes. She is not getting this help from her current Doctor and is prepared to travel to London Bridge Hospital.

I was lucky enough to get my diagnosis some years ago by Prof Hughes 😀

Written by
AvsG profile image
AvsG
To view profiles and participate in discussions please or .
Read more about...
18 Replies
MaryF profile image
MaryFAdministrator

I am sure members on here will tell you who they see, I see Prof Hughes but he is not taking on new patients, some of my friends seen Dr Kaul and have been very pleased, but there are quite a few doctors there, I am sure you will get some good ideas, having asked the question. MaryF

AvsG profile image
AvsG in reply to MaryF

Thank you for getting back to me so quickly. I'll let her know about Dr Kaul 😊

designer16 profile image
designer16 in reply to MaryF

Mary I was referred me to Patrick Gordon. Has anyone had any experiences with seeing him?

MaryF profile image
MaryFAdministrator in reply to designer16

I have not, maybe others have. MaryF

AvsG profile image
AvsG

Thank you for suggesting Dr Kaul. I'll let her know 😊

SuzanneJ profile image
SuzanneJ

I see Dr Kaul and he would be my recommendation going by the excellent treatment I have received from him. I’m sure the other doctors at London Bridge Hospital are good too but speaking from experience I highly recommend Dr Kaul. Especially for a first time diagnosis from the start.

AvsG profile image
AvsG in reply to SuzanneJ

Thank you, that's good to get another recommendation for Dr Kaul 😀

Fra22-57 profile image
Fra22-57

I see Professor David D Cruz who is marvellous. First time I have been fully examined and listened to.He takes all medical history into picture.

Jennybreslau profile image
Jennybreslau in reply to Fra22-57

I’ve also seen dr D’Cruz he worked directly under prof Hughes and now I think he is the head of the Lupus clinic at Guys

AvsG profile image
AvsG in reply to Jennybreslau

Thank you, that is really helpful to know 😀

AvsG profile image
AvsG in reply to Fra22-57

It's really helpful to get your recommendation, thank you 😀

Fra22-57 profile image
Fra22-57

I also go down by train twice a year and stay overnight in London so not stressed

KellyInTexas profile image
KellyInTexasAdministrator

I see dr Natasha Jordan simply because she not only has the APS additional training, but has the “tag on” expertise in vasculitis also. That’s why I chose her- my veins were having so much trouble.

AvsG profile image
AvsG in reply to KellyInTexas

Thank you for your reply. I will pass this on 😀

I was diagnosed in 2008 by Prof Hughes himself after being told to take 2 Aspirin a day for the rest of my life by a consultant t my local hospital.!! Decided to write to Prof Hughes as I was not happy with this and so glad I did as I would not be here to tell you this otherwise. Prof Hughes put me onto Prof Khamashta who is now in Dubai working who was a fantastic Professor . Since he left I see Prof D'Cruz who is to the point but very good indeed. Kim is a Lupus Nurse who will help with questions and concerns - she is a very caring and informative person and answered all of my concerns. Extremely helpful indeed to know.

AvsG profile image
AvsG in reply to

Thank you for your recommendation. I was diagnosed myself by Prof Hughes then followed up by Prof Khamashta 🙂

katie10 profile image
katie10

Go to see Prof Hannah Cohen at UCLH - she is marvellous

AvsG profile image
AvsG in reply to katie10

I think it will have to be a specialist at London Bridge Hospital. Having to go privately as based in Scotland but thank you for recommendation 🙂

Not what you're looking for?

You may also like...

Hughes specialist at London Bridge Hospital?

Over the past 5 years I have been seen by Prof Hughes at London Bridge Hospital. Due to his...

Self testing problems with GP and Warfarin nurse

I was diagnosed with Hughes Syndrome a couple of months ago by Professor Hughes. He advised my GP...

Can anyone recommend Professor Munther Khamashta from the London Bridge Clinic?

Hi! Can anyone recommend Professor Munther Khamashta from the London Bridge Clinic? I need an...

Prof Hughes' August blog

The Olympics arrived in London. The weather held and the organisation worked like clockwork....

Professor Graham Hughes' Monthly Blog November 2016

BLOG – November 2016 Good and bad! November saw the publication of the 2nd edition of my book...