Sticky Blood-Hughes Syndrome Support
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APS specialist recommendation for London Bridge Hospital

Hi, can anyone recommend which Doctor at London Bridge Hospital would be good for helping to get a diagnosis of APS/ Hughes Syndrome? This is for another person that has contacted me for help. She needs to see a specialist that will do the necessary blood tests and listen carefully to her symptoms and look at her history of clotting episodes. She is not getting this help from her current Doctor and is prepared to travel to London Bridge Hospital.

I was lucky enough to get my diagnosis some years ago by Prof Hughes 😀

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I am sure members on here will tell you who they see, I see Prof Hughes but he is not taking on new patients, some of my friends seen Dr Kaul and have been very pleased, but there are quite a few doctors there, I am sure you will get some good ideas, having asked the question. MaryF

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Thank you for getting back to me so quickly. I'll let her know about Dr Kaul 😊

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Mary I was referred me to Patrick Gordon. Has anyone had any experiences with seeing him?

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I have not, maybe others have. MaryF

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I have always found Dr Kaul to be very caring and a good listener but then I don't really know all of the Drs there personally, but he would be a good choice.

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Thank you for suggesting Dr Kaul. I'll let her know 😊

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I see Dr Kaul and he would be my recommendation going by the excellent treatment I have received from him. I’m sure the other doctors at London Bridge Hospital are good too but speaking from experience I highly recommend Dr Kaul. Especially for a first time diagnosis from the start.

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Thank you, that's good to get another recommendation for Dr Kaul 😀

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I see Professor David D Cruz who is marvellous. First time I have been fully examined and listened to.He takes all medical history into picture.

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I’ve also seen dr D’Cruz he worked directly under prof Hughes and now I think he is the head of the Lupus clinic at Guys

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Thank you, that is really helpful to know 😀

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It's really helpful to get your recommendation, thank you 😀

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I also go down by train twice a year and stay overnight in London so not stressed

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I see dr Natasha Jordan simply because she not only has the APS additional training, but has the “tag on” expertise in vasculitis also. That’s why I chose her- my veins were having so much trouble.

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Thank you for your reply. I will pass this on 😀

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I was diagnosed in 2008 by Prof Hughes himself after being told to take 2 Aspirin a day for the rest of my life by a consultant t my local hospital.!! Decided to write to Prof Hughes as I was not happy with this and so glad I did as I would not be here to tell you this otherwise. Prof Hughes put me onto Prof Khamashta who is now in Dubai working who was a fantastic Professor . Since he left I see Prof D'Cruz who is to the point but very good indeed. Kim is a Lupus Nurse who will help with questions and concerns - she is a very caring and informative person and answered all of my concerns. Extremely helpful indeed to know.

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Thank you for your recommendation. I was diagnosed myself by Prof Hughes then followed up by Prof Khamashta 🙂

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Go to see Prof Hannah Cohen at UCLH - she is marvellous

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I think it will have to be a specialist at London Bridge Hospital. Having to go privately as based in Scotland but thank you for recommendation 🙂

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