I have just spoken to my consultant via telephone appointment and feel incredibly frustrated and p*ssed off.
Just a quick recap on my history - I had my son no problems but after delivery I had an infection and generally a really rough time of it. During this time, I also delevloped what I now know to be very prominent livido 80% of the time and raynauds. On trying for a second child we had two miscarriages and I seriously could not cope with the thought of a third and begged my gp for some tests. Very long story short I test positive for LA and got referred to guys.
As I do not meet criteria of three or more early miscarriages or a pervious blood clot and have a blood factor deficiency it makes diagnosis difficult.
However there is ‘new’ test called an ASLA which takes into account the factor deficiency and have now tested positive for this test twice but they still won’t diagnose me!!!! AS I DONT MEET CRITERIA
What on earth was the point in all the tests if they still won’t diagnose. They want to say that I have the antibodies but not the syndrome, which to me makes no bloody sense at all.
Furthermore (in the consultants opinion) if my circulation was not so poor I would not even require aspirin and would be on no treatment whatsoever!
I know in the grand scheme of things I am extremely lucky to have this so mildly and others have suffered much more then I, but what does it take for them to say YES you have this and we need to keep an eye on you.
Admin team - please use your contacts to have this criteria non sense changed!