Thsnks for adding me to your group! ... - Hughes Syndrome A...

Hughes Syndrome APS Forum

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Thsnks for adding me to your group! Much aporeciated.

gmarcy profile image
4 Replies

gmarcy. Thanks so much for adding me. In hospital right now as they try to sort things out for me. Love reading the posts!

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gmarcy
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Kerlampert profile image
Kerlampert

Aloha from Hawaii!

Here's hoping that you can get out of the hospital soon. ...

And that you get an accurate diagnosis.

Let us know what they say!

Kerstin

gmarcy profile image
gmarcy

The Neurologist was just here and plans to talk to my Pulmonologist to determine whether what's going on. At least he is open to consulting wirh other specialists.

Lure2 profile image
Lure2 in reply togmarcy

Hi gmarcy,

Have they tested your blood for HS/APS?

If you get a diagnose I hope you look for a Specialist of autoimmun illnesses who has had patients like you with these sometimes rare symptoms and also sometimes micro-emboli that are not seen on a Scan of today as they are too tiny but still do great damage in the long run. We, who has got APS, need to be properly anticoagulated at a rather high INR.

Please tell us how it goes for you. Hope you stay with us now.

Best wishes from Kerstin in Stockholm

lupus-support1 profile image
lupus-support1Administrator

Wishing you a speedy recovery.

With good wishes,

Ros

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