gmarcy. Thanks so much for adding me. In hospital right now as they try to sort things out for me. Love reading the posts!
Thsnks for adding me to your group! ... - Hughes Syndrome A...
Thsnks for adding me to your group! Much aporeciated.
Aloha from Hawaii!
Here's hoping that you can get out of the hospital soon. ...
And that you get an accurate diagnosis.
Let us know what they say!
Kerstin
The Neurologist was just here and plans to talk to my Pulmonologist to determine whether what's going on. At least he is open to consulting wirh other specialists.
Hi gmarcy,
Have they tested your blood for HS/APS?
If you get a diagnose I hope you look for a Specialist of autoimmun illnesses who has had patients like you with these sometimes rare symptoms and also sometimes micro-emboli that are not seen on a Scan of today as they are too tiny but still do great damage in the long run. We, who has got APS, need to be properly anticoagulated at a rather high INR.
Please tell us how it goes for you. Hope you stay with us now.
Best wishes from Kerstin in Stockholm